Amanda
Forum Replies Created
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@Ray I thought I heard that was passed. I’ll have to do a little research and see if I can find some information from a reliable source online.
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Ray,
Thank you for sharing. That sounds like the process went fairly smooth. Is it a requirement to wait 6 months after a person stops working?
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It’s nice to hear that it isn’t taking a year or longer. Thank you for sharing your information! I think that will be helpful to other members.
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I contacted Lauren Science Trials – This was there response
Susan Rosenbaum <[email protected]>Sun 4/7/2019 10:41 AM“Hello Amanda,              Nice to e-meet you. Please feel free to offer all interested parties my contact information below. Thank you.
Best regards,
Susan
Susan Rosenbaum, J. D.
Founder, Chairman & Chief Executive Officer
Lauren Sciences LLC
345 East 94th Street
New York, NY 10128
Tel: 212 737 0455
Cell: 347 497 2446
[email protected]
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I checked out your link. I think your writing captures so much emotion and expresses what many pALS are going through.
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Diana,
Your post interest me. I’ve had many family members with ALS. My Aunt Norma, had surgery on her hand and within a year she was diagnosed with ALS. My other Aunt had surgery on her foot and shortly after was diagnosed with ALS. My father shared his theory – that he believed both of their cases were “brought on” by the trauma. My father also had ALS, although no trauma prior to the onset. I don’t know all the details to either case, just the information that was shared with me by my dad. After reading through your post and Glen’s post, it does raise my curiosity regarding the possible connection. It will be interesting to see if other members have similar cases.
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Diana,
Thank you for your posts. Dagmar is amazing. I keep going back to ALS News Today and reading her columns too. She is so inspiring.
Let me check. Sometimes one of the moderators have to approve a post. I’m not sure what triggers that action, but I will ask.
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Tim,
Your feedback is very important to us. Thank you for bringing that to our attention. Let me share this with some of our colleagues at ALS News Today and see if these issues can be addressed. I use a laptop so I think the way I upload pictures may be different.
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Tim,
Your feedback is very important to us. Thank you for bringing that to our attention. Let me share this with some of our colleagues at ALS News Today and see if these issues can be addressed. I use a laptop so I think the way I upload pictures may be different.
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Good evening Diana and thank you for such a great post! I think your questions are great and I’m sure Dagmar (and a some of our pALS members) will reach out to you with their thoughts and answers. I find Dagmar’s column inspiring and motivating! She is a great role model, that is for sure!
I was researching clinical trials online earlier today. I did find one website that appeared updated. It was https://www.als.net/als-research/clinical-trials/257/ Â Please take a look at it and let me know what you think.
Amanda
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Thank you for sharing your experience.
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Thank you for sharing your experience with the members.
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This might be helpful. http://www.alsa.org/research/focus-areas/genetics/
My doctor explained that in my family the mutation is from my father’s side of the family, and is in the SOD1 gene. The mutation was not required from both parents in my family’s cases (13 plus).Â
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Glenn, it looks like they were recruiting in late 2o18 and January 2019. I’ve included the link for the information I found online.
https://fightmnd.org.au/wp-content/uploads/2018/11/1.-2019-Clinical-Trial-Grants.pdf
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No sir. No silly donate links. Just articles and information please!