[Fatimah]

Hello  my mother has bulbar ALS and 6 months ago she had peg tube connected to her stomach.  At the beginning the formula was disturbing her stomach, causing  pain and diarrhea. We change the formula to jevity . All the medication has to be crushed. If you reach the point of chocking your food , it is critical and having PEG feeing is the correct decision.

She adapted well now and her weight  is stable .

[Fatimah]

Thank you Dagmar .

You spread positive energy as usual.

[Fatimah]

My mother diagnosed with ALS 2 years ago with bulbar type.

She has difficulties whith swallowing. We noticed she lost weight  and lost her appetite as well.
<p style=”text-align: center;”>She can not keep the liquid in her mouth , she adapted now by taking small amount of liquid and eating soft,wet food with sauce.</p>

[Fatimah]

<p style=”text-align: left;”>Hello everyone</p>
I took my mother , 70 years old, last February to Ukrainian stemm cell centre.

They claimed she will notice some improvement and the progression will be sslow. She has bulbar ALS affecting her speech and swallowing  mainly.

Unfortunately,  after 3 months of the stem cell, we did not notice any improvement and her speech is deteriorating.

 

We are trying to find any proper way of communication, she can not read or write ,so it is more difficult for her and for us.