John Lopynski

I have burning pain in my legs and it is worse when sleeping.  It got very bad so I had two epidural shots in my lumbar spine and that helped.  I take THC and CBD orally prior to bed as well as use CBD oil on the sides of my legs.  I have also started to use magnesium oil on my legs and elsewhere where there are no symptoms.  It may be helping as…[Read more]

I would also like to know how best to acquire Ammonaps in order to replicate the AMX 0035 trial.  Is this by prescription and has there been any side effects?

I was diagnosed with ALS in September of last year.  Like many PALS I immediately started a structured diet and detox regimen.  I did this so that I could then spend most of my time focusing on mind-body healing.  I am a firm believer that the mind can heal the body and that meditation is the tool that will allow this to happen.  I believe as man…[Read more]

Hi Karen.  So it looks like Ibudilast has improved your symptoms, is that correct?  How long have you been taking it?  Thanks

Hi Martino.  After 5 months are you seeing improvement?  Thanks

I have a question about fasciculations.  My symptoms started with left leg muscle weakness and numbness in December 2018.  Right leg also had minor weakness and denervation. I ended up having minimally invasive back surgery March 2018 as all surgeons thought I had nerve compression as my MRI showed spinal stenosis.  It was only after surgery di…[Read more]

I was diagnosed September 20th, 2019.  My first symptom was in December of 2018 when my left leg became somewhat numb and weak.  The ortho surgeons and neurosurgeons thought is was my spine and so I had minimally invasive back surgery in March.   The surgeon admitted he missed decompressing my nerve roots so I still have numbness in my left leg…[Read more]