Forum Replies Created

  • Rhonda Hill

    Member
    December 3, 2021 at 10:18 am in reply to: ALS and nurturing relationships

    Funny. First let me say I am caretaker for my X-husband. We were married 25 years, divorced 12 with very little contact during the 12 years. Our communication is poor. I have found having someone else around as much as possible is very helpful. He seems to use his words then instead of expecting me to just “know”. It has taken almost 2 years to get him to agree to a Will. He is just mad most the time. I have learned to gently say things like , ” I can’t even imagine how hard this is for you ” then walk away. If I don’t walk away he starts to tell me how must I hate him and that I must think he is an ass hole.
    I really hope more people write in with more positive up beat responses. I guess being the X makes things more complicated for both of us. But we’re learning.

  • Rhonda Hill

    Member
    October 20, 2021 at 8:57 am in reply to: In Loving Memory of my twin who last her fight with ALS in 2020.

    Your love for your twin and beautiful memories are truly a treasure. It warms my heat that you can share them so eligantly. Thank you for sharing your sister with us.

  • Rhonda Hill

    Member
    August 19, 2021 at 9:19 am in reply to: End of Life Topics

    ( my first time to chime in on any subject ) Hello. I am my X husband’s care giver. He has been diagnosed with ALS for just over a year now. Any time I bring up a living will or healthcare …any end of life subject , he tells me , now is not a good time. Maybe as John mentioned, getting a none family member to talk him through this would be better. Am I expecting too much out of him ? Is it too soon ? He had a cold this last week and scared me to death. I just knew this was the end for him ! But he is getting better. This made me more worried about his end of life plans not being taken care of.
    It’s not death that scares him , I think he thinks we ( me and the kids ) can take care of these things as they come up ?