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    • #21077

      As ALS progresses how do you address the changes in your relationship? Are you able to have open and honest conversations about how to address needs and concerns or are those conversations challenging? Do you get a lot of support from family members and friends?

    • #21083
      Rhonda Hill

      Funny. First let me say I am caretaker for my X-husband. We were married 25 years, divorced 12 with very little contact during the 12 years. Our communication is poor. I have found having someone else around as much as possible is very helpful. He seems to use his words then instead of expecting me to just “know”. It has taken almost 2 years to get him to agree to a Will. He is just mad most the time. I have learned to gently say things like , ” I can’t even imagine how hard this is for you ” then walk away. If I don’t walk away he starts to tell me how must I hate him and that I must think he is an ass hole.
      I really hope more people write in with more positive up beat responses. I guess being the X makes things more complicated for both of us. But we’re learning.

      • #21090

        Rhonda you are a very strong and compassionate person. I think stepping up to take care of your ex husband is noble and the world needs more people like you in it.


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