When I Needed Home Healthcare Aides, They Came Through for Me
My husband is my primary caregiver. In fact, he’s been my only caregiver for the past 12 years that I’ve been living with ALS. That changed last week, when he needed medical tests…
Living Well With ALS
— Dagmar Munn
When Dagmar Munn was diagnosed with ALS at the age of 59 in 2010, she tapped into her nearly 30 years of professional health and wellness experience. She not only follows her own advice but also inspires and teaches others to do the same. In addition to her columnist role, she is one of the moderators for the ALS News Today Forums and writes a personal blog called “ALS and Wellness.” She lives with her husband in Green Valley, Arizona, enjoying finding humor in life’s situations and spending free time pursuing creative projects in fiber arts.
Featured Post
How I navigate health anxiety and ALS fears
Navigating life with ALS is a journey, and for many of us, it comes with an extra passenger: health anxiety. Before my diagnosis, I thought my good health would continue forever. But…
Read more
My COVID-19 Recovery Took Weeks, but I’m Staying Positive
There I was, just living each day and minding my own business. I was following all the guidelines from the U.S. Centers for Disease Control and Prevention and wearing a mask everywhere I…
Living With ALS Is a Matter of Letting Go and Keeping On
Newly diagnosed ALS patients often contact me and ask what I eat, what I do, and how I’ve managed to continue living with ALS for the past 12 years. I explain that there…
My ALS Week: Voice Therapy, New Exercise Ideas, and the Loss of a Colleague
This past week had me experiencing a roller coaster of emotions. I started with a feeling of pride while reading a recent study that validated my at-home voice therapy sessions. Next, curiosity drew me…
I Just Received a Diagnosis of ALS. What Now?
Sometimes the simplest things can help us the most. That’s what I learned in the months right after I received a diagnosis of ALS. Like most newly diagnosed ALS patients, I felt overwhelmed…
Improving ALS Representation in Movies: My Behind-the-Scenes Role
Ever since I was diagnosed with ALS in 2010, I’ve become sensitive to how ALS is represented in the movies. And I’ll admit to voicing my opinion about the topic in several…
My Week of ALS Milestones, Plus a Special Honor for My Father
I’m all in when it comes to celebrating milestones, and as many of my readers know, I’m a glass-half-full person. So when June arrived, I didn’t have to look far for my first…
My ‘Go-along’ Adventures Add Humor to Life With ALS
I use many strategies to keep myself engaged in life and avoid getting pulled down mentally by my ALS. Being a “go-along” is one of those strategies, and it’s a perfect partner to…
With ALS, I Take Time for Minicelebrations Every Week
My week has been full of projects, online responsibilities, physical activities, minicelebrations, and, oh yes, living with ALS. And while we ALS patients often complain that having our disease is a 24/7 challenge…
My ALS Strategy for National Eat What You Want Day
Like many ALS patients who have swallowing issues, a condition known as dysphagia, I follow a regimen of what I can and cannot eat. I’ve accepted this as my new normal for a…
Why We Still Need More ALS Awareness
Did you know that May has been ALS Awareness Month for the past 30 years? Yes, that’s right, 30 years. Some probably think ALS awareness activities began in 2014 with the ice bucket challenge.
Sitting Too Much? These 3 Tips Can Help
ALS life sure involves a lot of sitting. Although I keep myself busy with daily projects, most of what I do has me sitting at a computer. Added to that, I sit when eating…
