ALS ONE joining ALS Network to strengthen research, services
Integration expected to expand care access and research collaboration
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- ALS ONE is integrating with the ALS Network to strengthen research and patient services.
- The integration is expected to expand care access and support scientific progress for ALS.
- The integration is expected to be completed in 2026, pending regulatory approvals.
ALS ONE, a Massachusetts-based nonprofit focused on accelerating research into amyotrophic lateral sclerosis (ALS), will soon become part of the ALS Network, an ALS advocacy organization that serves people with ALS in California and Hawaii.
“This moment marks a real inflection point for the ALS community,” Sheri Strahl, president and CEO of the ALS Network, said in a joint press release from the two organizations. “By bringing ALS ONE and the ALS Network together, we are pairing urgency with innovation — expanding access to care, accelerating research, and using technology in smarter ways, so that people living with ALS see progress sooner and feel the impact faster.”
Integration aims to expand research funding and patient services
By joining forces, the two organizations aim to strengthen their ability to fund research, deliver services to people affected by ALS, and expand their reach nationwide.
“This is about scale, speed and staying true to our original mission,” said Mark Sullivan, chairman of the ALS ONE board of directors and president and CRO of regulated industries at the software company Salesforce.
“By joining forces with the ALS Network, we can unlock greater corporate funding for research, advance technology-driven solutions leveraging the Salesforce network, and continue to collaborate with the partners that ALS ONE has long supported,” Sullivan said. “Most importantly, we are aligning around a single goal, delivering progress for the ALS community faster than ever before.”
ALS ONE was created to foster partnerships between ALS researchers at several leading centers in Massachusetts. The group has worked with scientists at several major institutions, including the ALS Therapy Development Institute, University of Massachusetts Medical School, Massachusetts General Hospital, and Compassionate Care ALS (CCALS). Leaders at these organizations welcomed the decision to join the ALS Network.
“This partnership represents a powerful opportunity to harness technology, collaboration, and a shared purpose to drive the next era of progress in ALS,” said James Berry, MD, chief of the division of ALS and motor neuron diseases at Mass General Brigham. “By building on the strong foundation created by ALS ONE and working together with the ALS Network, we have the potential to transform how we advance research, expand access, and serve the ALS community nationwide.”
Leaders highlight potential impact on care and scientific progress
“Research gives us hope for the future, but care is about today,” added Ron Hoffman, founder and CEO of CCALS. “ALS ONE has helped shine a light on the real, immediate needs of people living with ALS and their families. I’m hopeful that through this new partnership, we will collectively continue to strengthen the connection between scientific progress and the compassionate, practical support people need right now.”
The integration between ALS ONE and the ALS Network is expected to be finalized this year, pending regulatory clearances and logistical steps to bring the two groups together. As part of the integration, two ALS ONE board members will join the ALS Network board of directors, and a third will serve as an advisory trustee.
“ALS ONE was my father’s vision to create a collaboration among the best and the brightest in the ALS field in order [to] expedite the path towards a cure for ALS while improving care now,” said Scott Gosnell, son of ALS ONE’s founder Kevin Gosnell. “We are incredibly proud of what ALS ONE accomplished over the past decade, and we know that through this integration, we will be able to continue advancing his vision and impacting the ALS community.”
