Share Your Blessings is a non-profit organization that specializes in helping children and adults with special needs. As part of its Project Maestro initiative, it has given away more than 750 Beamz Interactive Music Systems with a retail value of $300,000 to people with disabilities, according to…
Share Your Blessings Donates $300K Worth of Beamz Music Systems
Mindfulness-based programs may help improve anxiety and depression in patients with amyotrophic lateral sclerosis (ALS), according to results of a study published recently in the European Journal of Neurology. The study is titled “Meditation training for people with amyotrophic lateral sclerosis: a randomized clinical trial.” The journal also published…
An artificial-intelligence-proposed ALS therapy prevented the death of movement-control neurons in a lab and delayed the onset of the disease in an animal model, according to British scientists. The University of Sheffield team said the AI company BenevolentAI suggested the therapy, which has yet to have a name. The drug candidate promotes…
15 Signs That Confirm You’re Definitely a Spoonie
A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons. How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be…
An imbalance between production and degradation of protein in the central nervous system may contribute to amyotrophic lateral sclerosis (ALS), researchers at England’s University of Sheffield suggest. Their study, “Protein Homeostasis in Amyotrophic Lateral Sclerosis: Therapeutic Opportunities?,” appeared in the journal Frontiers in Molecular Neuroscience. It reviewed available data showing that disturbances in…
HVH Precision Analytics presented findings of its big data analysis for earlier diagnosis of ALS (amyotrophic lateral sclerosis) to help clinicians treat patients sooner and allow patients to possibly enroll in clinical trials. HVH’s poster presentation, titled “Big Data Analytics for Early Diagnosis of Amyotrophic Lateral Sclerosis (ALS),” took place at…
An Overview of Motor Neuron Disease
In this video, Dr. Simon Freilich gives an overview of the main type of motor neuron disease: amyotrophic lateral sclerosis (ALS). MORE: 16 fast facts about amyotrophic lateral sclerosis Dr. Freilich explains that ALS accounts for around 85 percent of motor neuron disease cases. The…
9 Ways to Manage Brain Fog
One of the most frustrating symptoms of living with a chronic illness is brain fog. There are medications to treat many symptoms of chronic diseases, but sadly there isn’t yet a pill that takes away brain fog. However, there are ways to deal with it so patients can minimize its effects and…
Researchers at Ben-Gurion University (BGU) believe that an existing FDA-approved anti-cancer drug, rituximab, could be modified and used to treat amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. In lab studies with mice, the therapy restored resident immune cells of the central nervous system, which could indicate…
ALS Therapy Radicava Seen to Uphold Benefits Over Nearly a Year in Extension Trial, Says MT Pharma
Data from the open-label extension trial of Radicava (edaravone) in patients with amyotrophic lateral sclerosis (ALS) demonstrated that the treatment continued to provide benefits after 48 weeks of treatment. These findings — presented by researchers from MT Pharma America at the May 18-20 European Network for the Cure…
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