Living With ALS

“This video by the The ALS Association Evergreen Chapter, showcases Pat and Jenny Dwyer and Melissa Erickson and their journey with ALS.” Learn more about ALS here: https://bit.ly/ALSNewsToday…

In this NutritionFacts.org video, follow the search for some answers on ALS (also known as Lou Gehrig’s Disease). Learn more about ALS here: https://bit.ly/ALSNewsToday…

https://www.youtube.com/watch?v=KIFiEOzvR3Q Watch motor neurone disease patient Liam and his wife Anna share their thoughts on having the right wheelchair at the right time. Learn more about ALS here: https://bit.ly/ALSNewsToday…

Scripps Research Institute (TSRI) scientists have identified a new player in the ribosome-associated quality control complex that “tags” abnormal proteins, prompting them to aggregate and form clumps. This study, for a first time, shows that proteins can be marked for aggregation, and may constitute a new molecular pathway underlying neurodegenerative diseases such…

“The ALS Association’s Chief Scientist, Lucie Bruijn, PhD, MBA, hosted an “Ask the Expert” panel discussion on December 9th, 2015 at the MND/ALS International Alliance Meeting in Orlando, Florida.” Learn more about ALS here: https://bit.ly/ALSNewsToday…

In this news report aired on KSPR on May 28, 2008, meet 16-year-old Haley Stevens who lost control of her limbs during one school year, and her doctors say she’s the youngest person they’ve ever seen with ALS. Also, watch a interview with Haley’s mother. Learn more…

The ALS Association, together with partner Prize4Life, has announced the First Phase winners of The ALS Assistive Technology Challenge, which now enters its Prize Phase, where $400,000 will be awarded for the development of flexible, accessible technology to help people with amyotrophic lateral sclerosis (ALS) communicate better.

Because most symptoms of ALS are related to muscle activity, many people don’t realize the underlying cause: damage to the nerve cells. As ALS progresses, a few patients develop some level of cognitive impairment.

Matt Belina, US Navy pilot was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He and his wife are now actively trying to fight the barriers the FDA’s lack of approvals raise and prevent him from having access to experimental drugs he believes might save his life. Learn more…

German researchers have identified a new gene — called NEK1 — that appears to be responsible for familial amyotrophic lateral sclerosis (ALS). Loss of function mutations in the gene were more common in ALS patients than in healthy controls, according to findings published in the journal Brain. Familial ALS…