Amyotrophic lateral sclerosis (ALS) patients experiencing feelings of apathy reported lower quality of life (QoL), particularly regarding achievements in life and community connectedness, a new Australian study reports. The research, “Apathy and its impact on patient outcome in amyotrophic lateral sclerosis,” appeared in the Journal of…
https://vimeo.com/124557753 This heartfelt video from the ALS Association Texas chapter is all about Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known what the future had in…
When discussing potential Radicava (edaravone) treatment with amyotrophic lateral sclerosis (ALS) patients, physicians need to take great care in presenting facts in an ethical and scientifically sound manner, warn two researchers who believe that mainstream reports of the treatment may be misleading. The duo — Crystal Yeo, MD, PhD,…
This video from ALSA Oregon is all about Pam Kofstad and her family. Pam’s health was on the decline for more than a year, starting with the inability to turn her left foot out and often tripping, which led to her being confined to a wheelchair. In April 2015, Pam was diagnosed with amyotrophic…
The ALS Association was founded in 1985 and is dedicated to helping patients who suffer from amyotrophic lateral sclerosis (ALS). The non-profit organization operates with a global scope, coordinating their research with some of the world’s top scientists. Here are six more things this incredible organization does: Research…
A dissolving tablet version of riluzole called BHV-0223 has shown positive bioequivalence when compared to the oral form of the therapy, Rilutek, developer Biohaven Pharmaceuticals announced. The dissolving tablet, placed under the tongue, is easier to administrate to patients with amyotrophic lateral sclerosis (ALS) who have trouble swallowing. BHV-0223 also was found…
This video from Tyler Morning Telegraph is all about Christi Wyatt Zimmerman. MORE: Soccer coach mom talks about her life with ALS Zimmerman, who’s from Texas, was diagnosed with amyotrophic lateral sclerosis (ALS) in 2014 at just 36 years old. However, despite the devastating news, she’s remained…
This week, Stephen Hawking turned 76. While 76 doesn’t seem all that impressive with many living past 100 in this day and age — for Hawking, it’s simply remarkable. Stephen Hawking was diagnosed with amyotrophic lateral sclerosis (ALS) when he wast just 21 years old. At the time of his…
NeuroSGC, a new scientific partnership formed by the Structural Genomics Consortium (SGC) and the Montreal Neurological Institute and Hospital (The Neuro) aims to discover new treatments for amyotrophic lateral sclerosis (ALS) and Parkinson’s disease — both of which currently lack effective therapies. Drug discovery for these and other neurological…
The U.S. Food and Drug Administration (FDA) has issued a warning to the American CryoStem Corporation of Monmouth Junction, New Jersey, for marketing Atcell, the company’s adipose-derived stem cell product, without FDA approval. In its warning letter, the FDA noted “significant deviations from current good manufacturing practice requirements, including some…
