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BrainStorm Appoints VP of Patient Advocacy and Government Affairs

BrainStorm Cell Therapeutics has appointed a new vice president of patient advocacy and government affairs, a move intended to reinforce the company’s commitment to the amyotrophic lateral sclerosis (ALS) community. The new vice president, Mary Kay Turner, brings more than two decades of experience in biotech and pharmaceutical advocacy…

Filmmaker Finishes Film Project With Advanced ALS

In this video from CBS Sunday Morning, follow the journey of award-winning filmmaker Simon Fitzmaurice as he completes his pet project, a film called My Name is Emily, despite being diagnosed with amyotrophic lateral sclerosis (ALS) eight years ago. MORE: Explaining the progression…

Southern Research Names New Neuroscience Chair to Expand Fight Against ALS, Other Diseases

Alabama-based Southern Research has appointed neurodegenerative diseases expert Rita Cowell as chair of its neuroscience department to help expand research into potential cures for amyotrophic lateral sclerosis (ALS) and other diseases like Alzheimer’s and Parkinson’s. Cowell’s work has focused on the root causes of why people develop neurodegenerative diseases that lack…

A Year in the Life of Someone Living With ALS

In this touching video from Friends of Alan Gustafson, we see how quickly the progressive condition amyotrophic lateral sclerosis (ALS) can change a person’s life. MORE: Four treatments that can help improve life with ALS In just a year, Alan has gone from an active father to being…

9 Things to Know About the New ALS Drug Radicava

On May 5, the FDA approved the first new treatment in 22 years for amyotrophic lateral sclerosis (ALS). The drug, Radicava (edaravone), has been found to slow down the decline of physical ability in ALS patients by a third. Find out more about the FDA approval of Radicava here.  MORE:…