This emotional video from Marissa Coriell is an incredibly moving tribute to her husband, Alexander. Alexander was diagnosed with amyotrophic lateral sclerosis (ALS) in January 2013. The video shows how quickly his condition progressed. By September 2013, Alex was unable to swallow food and needed a feeding tube.
https://vimeo.com/124556645 This video from the ALS Association Texas chapter is all about Steve. A recently retired chaplain for the federal prison system from Fort Worth, Texas, Steve is about to get married to his longtime sweetheart, Anna. MORE: Pastor Kevin Kinchen hasn’t let his ALS diagnosis get in the…
ALS can be a difficult disease to diagnose as many of the early signs and symptoms can mimic those of other conditions. This video shared by Mike Brez is all about Clara. Clara was recently diagnosed with amyotrophic lateral sclerosis (ALS) after being misdiagnosed with carpal tunnel syndrome. MORE:…
In this touching video from Friends of Alan Gustafson, viewers see how quickly the progressive condition amyotrophic lateral sclerosis (ALS) can change a person’s life. MORE: Four treatments that can help improve life with ALS In just a year, Alan has gone from an active father to being…
Amyotrophic lateral sclerosis (ALS) patients experiencing feelings of apathy reported lower quality of life (QoL), particularly regarding achievements in life and community connectedness, a new Australian study reports. The research, “Apathy and its impact on patient outcome in amyotrophic lateral sclerosis,” appeared in the Journal of…
https://vimeo.com/124557753 This heartfelt video from the ALS Association Texas chapter is all about Christi. The young mother from Tyler, Texas is still coming to terms with her recent amyotrophic lateral sclerosis (ALS) diagnosis and wonders if she would have lived her life differently had she known what the future had in…
When discussing potential Radicava (edaravone) treatment with amyotrophic lateral sclerosis (ALS) patients, physicians need to take great care in presenting facts in an ethical and scientifically sound manner, warn two researchers who believe that mainstream reports of the treatment may be misleading. The duo — Crystal Yeo, MD, PhD,…
This video from ALSA Oregon is all about Pam Kofstad and her family. Pam’s health was on the decline for more than a year, starting with the inability to turn her left foot out and often tripping, which led to her being confined to a wheelchair. In April 2015, Pam was diagnosed with amyotrophic…
The ALS Association was founded in 1985 and is dedicated to helping patients who suffer from amyotrophic lateral sclerosis (ALS). The non-profit organization operates with a global scope, coordinating their research with some of the world’s top scientists. Here are six more things this incredible organization does: Research…
A dissolving tablet version of riluzole called BHV-0223 has shown positive bioequivalence when compared to the oral form of the therapy, Rilutek, developer Biohaven Pharmaceuticals announced. The dissolving tablet, placed under the tongue, is easier to administrate to patients with amyotrophic lateral sclerosis (ALS) who have trouble swallowing. BHV-0223 also was found…
