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July 4, 2019 News by Hal Foster, PhD

World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

It wasn’t until Gordana Loleska’s son David was 14 years old that doctors in their native North Macedonia diagnosed his kidney, vision, and hearing problems as Alport syndrome. Although she had known for years that something was wrong, the news that David would battle a lifelong rare disease devastated…

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