ALS Stories: This Woman’s Diagnosis Motivated Her to Fight for Clinical Trials

https://www.youtube.com/watch?v=FvC5KheFWG8

This video from Patients Like Me is all about Cris, who is a mother, grandmother, and great-grandmother. Cris also has amyotrophic lateral sclerosis (ALS).

She was diagnosed two years ago but hasn’t had the time to sit around and get depressed about her diagnosis. In between spending time with her family, Cris also looks after her husband who found out he had rectal cancer shortly after her own diagnosis.

MORE: ALS stories: How Gus is getting the most out of life. 

Cris is also a fierce advocate for the disease and has had meetings with the FDA and advocacy representatives in Washington, D.C., to discuss the need for more clinical trials for ALS and the need for more patience in the clinical trials. She is determined to do as much as she can and not be defined by the disease.

MORE: Nine things to know about the new ALS drug, Radicava

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