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Celebrities with ALS

Lou Gehrig Jun 19, 1903 – Jun 2, 1941 Professional Athlete (Baseball) Stephen Hawking Jan 8, 1942 – Present Professor (Theoretical Physics & Cosmology) Mao Tse Tung Dec 26, 1893 – Sep 9, 1976 Leader – People’s Republic of China…

Sensory Neurons in ALS

In a study published in the Journal of Comparative Neurology, researchers found the same sensory neurons that keep a person from dropping a glass of water are implicated in amyotrophic lateral sclerosis (ALS), and because these neurons are easier to study in the laboratory than motor neurons, they may help advance new therapies for the…

ALS May Increase Anxiety and Depression

Some studies have suggested that anxiety is a common manifestation at the diagnostic stage of patients with ALS. Once diagnosed, the majority of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND) patients present anxiety-depressive disorders and even suicidal reflections. These symptoms negatively affect their quality of life, and higher depressive scores have…

Man with ALS Gets Bucket List Super Bowl Trip

According to The Charlotte Observer, Kevin Clay, age 54, is a Panthers super fan. A season ticket holder for 20 years, Clay and his wife Melinda love the team so much they named their son Cam, after Cam Newton. Clay has ALS and has lost his ability to speak.

Last Week’s Hot Topic on ALS

Last week’s hot topic on ALS was ALS, Gulf War Illness Caused by Toxic Exposures, Report Says written by Magdalena Kegel.  The article refers to a report which shows that Gulf War Illness is a result of exposure to pesticides and other toxins used in the Gulf War.

An ALS Love Story – Often Awesome

“Hello my name is Tim and I have ALS, America’s best kept secret disease.” This video by AllAcesMedia focuses on the daily routine Tim lives with and the care he receives from his wife, friends and nurses. If you ever wanted to know what living with ALS is…this is the one…

Voice for an ALS Patient

Meet Don and his family and learn all about how an ALS patient who had never used a computer before, is able to get his voice back. Keep up to date on ALS news here: https://bit.ly/1QHMBGw…

ALS Patients to be Able to Communicate with Their Families in Their Own Voice

The Augmentative Communication Program (ACP) at Boston Children’s Hospital has received a $1.5 million donation to set up a program focused on improving the quality of life of amyotrophic lateral sclerosis (ALS) adult patients. “If you could not speak and you want to say to someone, ‘I’m thirsty,’ a computer-generated synthetic voice is fine.

Documenting Life with Motor Neuron Disease

11 years ago, Pete Anderson was diagnosed with motor neuron disease – an incurable condition that’s robbed him of his voice and left him confined to a wheelchair. His life probably wouldn’t normally grab much attention if it weren’t for Pete Anderson’s determined effort simply to be able to…