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The Matt Bellina Story

Matt Belina, US Navy pilot was diagnosed with amyotrophic lateral sclerosis (ALS) in 2012. He and his wife are now actively trying to fight the barriers the FDA’s lack of approvals raise and prevent him from having access to experimental drugs he believes might save his life. Learn more…

Alumni Honored for ALS Fight

Jen and Pat Quinn, alumni from Iona College, were distinguished during the halftime at the Iona College Men’s basketball game versus Quinnipiac for their fight against amyotrophic lateral sclerosis (ALS).  Video by SALRADIO. Learn more about ALS here: https://bit.ly/1RmVMwo…

ALS Research – Dr. Strong

In this video by ALS Society of Canada, meet Dr. Michael Strong, a pioneer in ALS research with more than 20 years’ experience. Watch him comment on where your donated dollars go in research and the achievements of his lab at Western University. Learn more about ALS…

Last Week’s Hot Topic on ALS

Last week’s hot topic on ALS was an article titled Biohaven’s ALS Drug Candidate BHV-0223 Receives Positive FDA Feedback written by Magdalena Kegel. The article is focused on the recently announcement that Portage Biotech and Biohaven Pharmaceuticals  have received positive feedback from the U.S.

ALS Study Finds Higher Than Usual Levels of Axon ‘Repellent’ Protein in Patients’ Motor Cortex

Motor neurodegeneration in amyotrophic lateral sclerosis (ALS) can begin in axons at neuromuscular junctions and later spread to the cell body in the spinal cord, in a phenomenon known as the “dying back” hypothesis. Proteins involved in axonal regeneration may, for this reason, represent a potential therapeutic target in ALS. A research team from Germany found…

Mark Maddox – My Story

In this video by the Motor Neurone Disease Association, meet “Mark Maddox, the soccer player who made 300 appearances for Altrincham FC and now has motor neurone disease (MND).” Learn more about ALS here: https://bit.ly/ALSNewsToday…

Living with ALS: Stories of Strength

“ALS is a fatal, neurodegenerative disease that attacks nerve cells and pathways in the brain and spinal cord and slowly robs the body of its ability to speak, swallow and breathe. In the United States, a person is diagnosed with ALS every 90 minutes. The ALS Association St. Louis…