First Patient Enrolled in Phase 1 Gene Therapy Study in Ireland
A Phase 1 clinical trial of a gene-based therapy for amyotrophic lateral sclerosis (ALS) is now recruiting patients in one…
Articles by Forest Ray PhD
Same But Different Photo Contest Celebrates People With Rare Diseases
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography…
Prosetin Granted Orphan Drug Designation for ALS
The U.S. Food and Drug Administration has granted Prosetin orphan drug designation for the treatment of amyotrophic lateral…
Health Insurance, Cost of ALS Care Add to Disease Burden in US, Survey Finds
Accessing and understanding insurance coverage, and paying for medical treatments and services top the list of stressors that burden people…
New Telehealth App Connects Those With Motor Neuron Disease to Carers in UK
A new telehealth app to help people with motor neuron diseases such as amyotrophic lateral sclerosis (ALS) connect with…
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the…
Innovate UK Grant Supports Early Work on Cell Therapy for ALS
Innovate UK has given a grant to Reflection Therapeutics to help fund research into new…
Nerve Cell Injury and Chronic Inflammation Need Be Focus of ALS Research, Study Argues
The greater incidence of amyotrophic lateral sclerosis (ALS) among professional athletes and people with head trauma, and the faster…
Paper Explores Whether Lou Gehrig Experienced a Temporary ALS Reversal in 1938
For three weeks during Lou Gehrig’s final season, the baseball legend appeared to shake off his symptoms of amyotrophic…
National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure…