Taking Help Wherever I Can Find It
About four years ago, I began to be overwhelmed with sadness about my husband’s continuing decline from amyotrophic lateral…
Articles by Kristin Neva
When a Season of Life Is Fading Away
I’ve been preparing for winter. I drained the hoses and hung them in the garage a few weeks ago. We…
Unexpected Outcomes From Sharing Our Story
“Your YouTube channel must be taking off,” my 15-year-old daughter said. “Your edema video was recommended to me again. I…
When Fear Gives Way
“How are things going?” a friend asked. I explained that I have been concerned about my husband Todd’s breathing.
The Power of Puns
“Hurry! I’m having a pee-flex,” my husband said as I put on disposable gloves. I grabbed the urinal and held…
The Limits of Marriage
Eighteen years ago, Todd and I joined our lives in marriage, vowing for better or worse, in sickness and in…
Navigating Interventions With the Ongoing Losses of ALS
My husband, Todd, began monitoring his breathing after he was diagnosed with ALS. We were told that he’d need…
Getting Our Affairs in Order
In the days after my husband, Todd, was diagnosed with ALS, I was overwhelmed with what lay before us. But…
Does It Ever Get Easier?
“Does caregiving for ALS ever get easier?” I pondered the question someone had posted on social media. I couldn’t sleep…
What Happens When We Compare Our Lives With ALS
When our kids started school this fall, I had a sense of relief that my husband, Todd, made it to…