Wanting More Than Family Screen Time
Family movie nights are great, but it’s a challenge to think of other things we can do together now that…
Articles by Kristin Neva
Spring Break With ALS Comes With Sacrifice and Love
I think a lot about how a parent’s ALS affects kids. Recently, an online friend lost her husband to ALS.
‘Why Didn’t You Tell Me I Was Happy?’
After my husband, Todd, was diagnosed with ALS, we thought he would have at most five years to live.
Discovering the World Is Broken
“What the heck happened to that guy?” a young boy called loudly to a woman leading him and other preschool…
Giving Up Social Media Isn’t That Simple for Caregivers
I gave up social media for Lent. Many Christians deny themselves some pleasure or refrain from a vice or a…
Life With ALS Is Hard, and Sometimes the Little Things Are Too Much
Sometimes little things push me over the edge. One morning last week, I was already cranky because I had burnt…
I’m Thankful for Getting a Chance to Miss You
“I’m glad I got the chance to miss you,” I told my husband, Todd, when I got home after a…
It’s Important to Share Our ALS Stories on Rare Disease Day
I was overcome with grief after my husband, Todd, was diagnosed with ALS. He was just 39. Our daughter…
Facing Winter Together and Fighting as Best as We Can
It’s been an intense couple weeks of winter weather on Michigan’s Keweenaw Peninsula. After a mild January with many…
An ALS Diagnosis Changes Our Perception of Life
Some people take a long time to get an ALS diagnosis, which is a drawn-out, stressful journey. Our story…