‘Graves Are for the Living’
On Memorial Day, my mom, the kids, and I visited Lakeside Cemetery in Hancock, Michigan. My mom and…
Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.
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On Memorial Day, my mom, the kids, and I visited Lakeside Cemetery in Hancock, Michigan. My mom and…
A few years before my husband, Todd, was diagnosed with ALS, he baked a cake for a church fundraiser with…
As I waited for the postmaster to bring my package to the counter, I tried to think of what I…
For a couple years after my husband Todd’s ALS diagnosis, I sought companionship in books written by people with ALS…
With my gym closed, I’ve been getting my daily exercise by cross-country skiing. A calm happiness washes over me at…
Since my husband has ALS and is paralyzed, his life is much the same under COVID-19 stay-at-home orders. Todd still…
When someone asks how I am in passing, I know the script: “I’m fine. How are you?” Sure, the question…
The other morning, I woke up to find a note on my husband’s wheelchair cushion: “Buttercup, please cook the sausage.
Since my husband was diagnosed with ALS a decade ago, we’ve adapted to this difficult life in ways I never…
When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much…