The Little Things Can Mean So Much
The other morning, I woke up to find a note on my husband’s wheelchair cushion: “Buttercup, please cook the sausage.
Articles by Kristin Neva
We’ve Adapted Before, and We’ll Adapt Again
Since my husband was diagnosed with ALS a decade ago, we’ve adapted to this difficult life in ways I never…
7 Ways Life with ALS Is Similar to Life During a Pandemic
When someone asked my husband how he is doing in light of COVID-19, Todd replied, “Our life isn’t that much…
Making Peace with the Waves of Emotion that Come with ALS
After my husband, Todd, was diagnosed with ALS, we battened down the hatches to prepare for the coming storm. We…
Appreciating My Partner
My 14-year-old daughter woke me up at 4:45 a.m. “Do you hear that?” “Hear what?” I asked groggily. “You don’t…
Living Life While Taking Precautions
After three weeks of my husband, Todd, being cloistered in our home with a cold, we ventured out Saturday for…
ALS Is Rare, but My Husband Is Part of a Broader Rare Community
I didn’t react when a spine care specialist mentioned ALS as a possible cause of my husband’s weak arm, because…
5 Ways to Help Kids Cope with a Parent’s ALS
One of my biggest concerns is how my husband’s ALS will affect our children. They were both under 5 when…
3 Ways ALS Has Changed Me
I’m not the same person I was 10 years ago, before my husband, Todd, was diagnosed with ALS. The brutal…
I Am Savoring Our Limited Time as a Family
A month after my husband, Todd, was diagnosed with ALS, I wrote in my journal: “Squeezing in memories is…