Learning the Rules for the Medicare Guessing Game
Like many families, we played games over the holidays. Because my husband, Todd, is completely paralyzed due to ALS, we…
Articles by Kristin Neva
Ordinary Outings Are Arduous with ALS
My Facebook friends post accomplishments like completing a 5K run. If I were to post my accomplishments, I would include…
Even Trees Die with No Known Cause or Cure
I tell potential customers that my Christmas wreaths will last until Easter. That usually gets a chuckle and often a…
In Defense of Delight in the Midst of Suffering
If my husband, Todd, did not have ALS, there would still be someone else with ALS. And there’s cancer. Childhood…
Grief Is a Wolf that Demands Attention
As I approached the one-year anniversary of my husband, Todd’s, ALS diagnosis, I wrote in my journal: “I…
We’re Figuring Out Healthcare on Our Own in Rural America
After my husband Todd’s ALS diagnosis, he said, “We need to sell the house and move near your parents.” He…
Calculating Risks While Balancing Family Life and ALS
I went parasailing during a vacation in Florida 10 years ago. I talked my brother into…
Wartime Living Tests Marriages
Sometimes I’ll pick up a magazine in a grocery store checkout line and see a marriage article about sex or…
Imagining Our Lives Without ALS
My husband, Todd, recently asked me, “What do you think our life would be like if I hadn’t gotten ALS?”…
We’ve Learned to Compartmentalize Family Life While Living with ALS
A few months after Todd’s diagnosis, our ALS clinic put me in touch with a woman who was further down…