The Circle of Life from Motherhood to Caregiving
I thought my days of obsessively avoiding germs and examining poop would be over once my babies grew, but such…
Articles by Kristin Neva
We Need Allies to Fight This War
My son pointed to a plastic army man on the ottoman. “That guy is a sniper,” he said. “He’s taking…
I’m Channeling My Grief About ALS into Action and Advocacy
The grief that accompanies ALS is multifaceted. I grieve my husband’s loss of function and the loss of our dreams.
Learning the Rules for the Medicare Guessing Game
Like many families, we played games over the holidays. Because my husband, Todd, is completely paralyzed due to ALS, we…
Ordinary Outings Are Arduous with ALS
My Facebook friends post accomplishments like completing a 5K run. If I were to post my accomplishments, I would include…
Even Trees Die with No Known Cause or Cure
I tell potential customers that my Christmas wreaths will last until Easter. That usually gets a chuckle and often a…
In Defense of Delight in the Midst of Suffering
If my husband, Todd, did not have ALS, there would still be someone else with ALS. And there’s cancer. Childhood…
Grief Is a Wolf that Demands Attention
As I approached the one-year anniversary of my husband, Todd’s, ALS diagnosis, I wrote in my journal: “I…
We’re Figuring Out Healthcare on Our Own in Rural America
After my husband Todd’s ALS diagnosis, he said, “We need to sell the house and move near your parents.” He…
Calculating Risks While Balancing Family Life and ALS
I went parasailing during a vacation in Florida 10 years ago. I talked my brother into…