After three weeks of my husband, Todd, being cloistered in our home with a cold, we ventured out Saturday for…
Kristin Neva
Kristin Neva is an author, mother of two, and caregiver for her husband, Todd, who was diagnosed with ALS in 2010 when he was 39 years old. Knowing they would need family support, they moved to Upper Michigan and built an accessible home on property next to Kristin’s childhood home. Kristin enjoys spending time outdoors, especially on the shore of Lake Superior in the summer. Todd no longer has use of his limbs, but he stays active working on projects on his computer using adaptive technology. They try to find joy in the midst of sorrow as Todd’s health declines.
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Articles by Kristin Neva
I didn’t react when a spine care specialist mentioned ALS as a possible cause of my husband’s weak arm, because…
One of my biggest concerns is how my husband’s ALS will affect our children. They were both under 5 when…
3 Ways ALS Has Changed Me
I’m not the same person I was 10 years ago, before my husband, Todd, was diagnosed with ALS. The brutal…
A month after my husband, Todd, was diagnosed with ALS, I wrote in my journal: “Squeezing in memories is…
I thought my days of obsessively avoiding germs and examining poop would be over once my babies grew, but such…
We Need Allies to Fight This War
My son pointed to a plastic army man on the ottoman. “That guy is a sniper,” he said. “He’s taking…
The grief that accompanies ALS is multifaceted. I grieve my husband’s loss of function and the loss of our dreams.
Like many families, we played games over the holidays. Because my husband, Todd, is completely paralyzed due to ALS, we…
My Facebook friends post accomplishments like completing a 5K run. If I were to post my accomplishments, I would include…