ALS Association, ‘Stronger as One,’ Adopts Unified Structure
In keeping with its commitment to turn amyotrophic lateral sclerosis (ALS) into a “livable disease” by 2030, and to…
Articles by Mary Chapman
ALS TDI Fundraiser, Azzur Fore Golf Tournament, Set for July 15
A July 15 golfing event brings the ALS Therapy Development Institute (ALS TDI) together with he Azzur Group to…
Centogene Sets Mission to Cure 100 Rare Diseases in Next 10 Years
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
HD5K Charity Run Goes Virtual, Raises £40K for MND Association
Largely due to going virtual this year, the annual HayesDavidson 5K (HD5K) charity run met its goal of raising…
EveryLife Introduces First of Kind ‘Roadmap’ to ICD Codes
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Get Ready for NORD’s Patient and Family Forum, Set for June 26-27
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
Get Ready for NORD’s Patient and Family Forum, Set for June 26-27
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
Association Sets Goal of Making ALS ‘Livable’ by 2030
With a heightened emphasis on clinical trials, improved care, and identification of risk factors, the ALS Association has created a…
Project Hope Opens UBC Chair to Draw ALS Trials to British Columbia
To further support amyotrophic lateral sclerosis (ALS) patients through research and clinical studies, the Canadian province of British Columbia…
LifeArc Joins MND Association in 7 in 7 Challenge Bolstering Research, Care
The U.K. research organization LifeArc will match £500,000 (about $704,000) of the money raised by the director of the…