$60K Grant to Support Work on Biomarkers for ALS, Like Disorders
Applications for a $60,000 one-year grant are now open for researchers working to discover or validate biomarkers for amyotrophic…
Articles by Mary Chapman
It’s Official: Each June 2 Will Be ‘Lou Gehrig Day’ for Major League Baseball
After a protracted campaign to make it happen, Major League Baseball (MLB) agreed to set aside each June 2…
‘Becca’ Fundraiser Set for May 4 to Honor Broadway Star Who Died of ALS
To honor the memory of Broadway actor and singer Rebecca Luker, who died of complications due to amyotrophic…
Partnership Gets Communication Devices to Mississippi ALS Patients
Under a new local partnership, Mississippi residents who have amyotrophic lateral sclerosis (ALS) will have free access to communication…
ALS Association Survey Focuses on Caregiver Needs and Well-being
ALS Focus has opened a new survey looking specifically at the needs and challenges of caregiving for people with …
Rare Disease Day at NIH, Set for March 1, Growing Year by Year
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
Doddie Foundation Gives £300,000 to Help MND Patients in UK
The My Name’5 Doddie Foundation has donated a total of £300,000 (about $420,600) to two U.K. nonprofits to support…
Improved EyeWriter Eye-Tracking System Can Help Patients Draw, Create
With a new version of a low-cost eye-tracking system called EyeWriter, artists and others who are paralyzed due to…
Pandemic Won’t Stop Rare Disease Day on Feb. 28
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…
NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…