ALS Association Moving to Press for ALS Research Money from Congress
As a new U.S. Congress prepares to start the annual process of determining funding for federal programs, the ALS Association…
Articles by Mary Chapman
NORD’s Caregiver Respite Program Continues Through Pandemic
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
Indiana Offering Specialty License Plate to Support ALS Research
Indiana motorists can now sport a specialty license plate on their vehicles to show their support for amyotrophic lateral sclerosis (ALS), while…
Honoring Stephen Hawking, Answer ALS Opens Data Portal to Scientists
To mark what would have been the 79th birthday of the theoretical physicist Stephen Hawking, who lived with…
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
ALS Association Cheers Likely End of 5-Month Wait for US Disability Benefits
After years of behind-the-scenes work, the ALS Association is celebrating passage of the ALS Disability Insurance Access Act of…
Target ALS Launches $15M Effort to Find Biomarkers, Expand Resources for ALS Research
Target ALS is launching an expansive $15 million research initiative aimed at discovering biomarkers and developing new scientific resources for…
MDA Wants Neuromuscular Disease Patients to Have Early Access to COVID-19 Vaccine
The Muscular Dystrophy Association (MDA) is encouraging the U.S. Centers for Disease Control and Prevention (CDC) to recommend…
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
Grand Slam for Lou Gehrig Day Campaign With All 30 MLB Teams On Board
The campaign for a league-wide annual Lou Gehrig Day recently received a major boost as all 30 Major League…