EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
Articles by Mary Chapman
ALS Association Grant Sustains HudsonAlpha Institute, Crestwood Medical Center Project
The HudsonAlpha Institute for Biotechnology has received a $20,000 ALS Association grant to continue its research collaboration with…
Eye-tracking Device Gives Voice to ALS Ice Bucket Challenge Co-founder Pat Quinn
For Pat Quinn, co-founder of the ALS Ice Bucket Challenge, everyday communication has become more challenging as his…
Radicava Added to Public Health Plans of Ontario, Brunswick and Alberta
Three Canadian provinces — Ontario, New Brunswick, and Alberta — have added Radicava (edaravone), a treatment for with …
NIH Earmarks $25M for Five-year Program Promoting ALS Research
The National Institutes of Health (NIH) is investing $25 million over five years in a program to encourage innovative research…
Global Day 2020 Calls Attention to ALS and Need for Better Care
Each June 21 marks Global Day 2020, 24 hours set aside to heighten awareness of amyotrophic lateral sclerosis…
BrainStorm Awarded $500K from ALS Association, I AM ALS to Support Biomarker Research
The ALS Association and I AM ALS have awarded BrainStorm Cell Therapeutics $500,000 to support an…
Mitsubishi Tanabe Opens Phone Support for Those Interested in Radicava
Mitsubishi Tanabe Pharma America (MTPA) has set up a support program for adults living with amyotrophic lateral sclerosis (ALS)…
Rare Diseases Clinical Research Network Opens Online Survey on COVID-19
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
WSU Students Design Mattress to Help ALS Patients Sleep Better
A student bioengineering team at Washington State University (WSU) has designed a mattress to help amyotrophic lateral sclerosis…