Pandemic Moves ALS Awareness Month Events and Activities Online
ALS Awareness Month has been observed each May since 1992. But this year, the COVID-19Â pandemic has forced…
Articles by Mary Chapman
Target ALS, AFTD Award $5M to Support Research Projects
Grant awards totaling $5 million will support six academic-industry projects into potential biomarkers and treatments for amyotrophic lateral sclerosis…
ALS Association Funding Earmarked to Improve Clinical Trial Infrastructure
The ALS Association has committed $652,543 over the next three years to support efforts to improve the quality and efficiency of…
Radicava Added to Public Health Plan for ALS Patients in Quebec
Quebec has added Radicava (edaravone),  Mitsubishi Tanabe Pharma’s treatment for amyotrophic lateral sclerosis (ALS), to its provincial medication plan.
MDA Hosts Facebook Live Event on ALS and COVID-19 on May 1
The Muscular Dystrophy Association (MDA) is hosting a Facebook Live event on May 1 concerning precautions and best…
NORD Opens COVID-19 Financial Aid Program for Rare Disease Community
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Ionis Scholarship Will Provide Physical and Mental Wellness Programs to ALS Patients
A $25,000 Ionis Pharmaceuticals scholarship will help amyotrophic lateral sclerosis (ALS) patients in the San Diego, California, area…
Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
Project ALS, Medidata Join to Speed Personalized ALS Therapies
The Medidata Institute and Project ALS have announced a research partnership aimed at better understanding amyotrophic lateral…
Aiforia and NeuroScience Associates Partner to Study Brain Changes in ALS
Aiforia Technologies and NeuroScience Associates (NSA Labs) are collaborating in an effort to learn more about how…