Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…
Articles by Mary Chapman
FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases
The U.S. Food and Drug Administration(FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with…
Muscular Dystrophy Association Gives AcuraStem $300K Boost to Develop ALS Therapy
A $300,000 grant from the Muscular Dystrophy Association (MDA) will back AcuraStem’s preclinical development of an amyotrophic lateral sclerosis…
Affiliated Managers Group Gives $20M to Help Establish ALS Research Center
Global asset management company Affiliated Managers Group (AMG) has announced a $20 million matching gift to establish the…
Teens and Young Adults Living with ALS Invited to Speak Out via Artist Creations in ‘Also Us’ Program
To bring attention to the plight of teens touched by amyotrophic lateral sclerosis (ALS), Mitsubishi Tanabe Pharma America (MTPA)…
MDA to Host Annual Wings Over Wall Street Benefit to Raise Funds for ALS Research
The Muscular Dystrophy Association (MDA) will host its 18th annual Wings Over Wall Street benefit Oct. 17 to…
Building on Family’s Ties, PopSockets Joins ALS Association’s ‘Every Drop Adds Up’ Campaign
With shared goals and a special connection, PopSockets has joined The ALS Association’s Every Drop Adds Up campaign…