Don’t Let Awareness Get Lost on the Already Aware
“What’s the buzz? Tell me what’s a-happening, Why should you want to know? Don’t you mind about the future? Don’t you try to think ahead? Save tomorrow for tomorrow, Think about today instead.” —…
Notes From the ALS Front
— Rick Jobus
Rick is a 62-year-old man who was diagnosed with ALS in January 2007. Currently a resident of Southwest Florida, he has lived in four other metropolitan areas, but greater Chicagoland will always be “home.” Rick is a degreed engineer, spending his career in the medical device industry. He’s had the good fortune of extensive travel throughout the United States, Europe, Asia, and the Caribbean. He writes, in part, to be an ALS advocate. Additionally, it is his hope that his output will help dispel the myth that technical folk and digestible prose aren’t mutually exclusive.
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In Memoriam: Rick Jobus, Feb. 6, 1958-June 19, 2022
Courtesy of Rick Jobus It is with deep sadness that we inform the ALS News Today community of the passing of our friend and treasured columnist, Rick Jobus, on June 19, 2022. Rick…
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A Plot-twisting Cliffhanger That Leaves Me Breathless and Hospitalized
“Take my hand, precious Lord, Lead me home. … When my life is almost gone, Hear my cry, hear my call, Hold my hand lest I fall.” Although I fall light-years shy of the…
Is It Do-si-Do or Do-si-Don’t With a New Home Healthcare Aide?
“I been in the right place, but it must have been the wrong time, I’d have said the right thing, but I must have used the wrong line, I’d have took the right road,…
A Musical Medley That Stands the Test of Time
“The secret of life is enjoying the passage of time.” Time fascinates me, now more than ever. In my own way, in the face of ALS, I’ve learned…
Simon Says, Breaking Up Is Hard to Do
“‘The problem is all inside your head,’ she said to me, ‘The answer is easy if you take it logically,’ … She said, ‘It grieves me so to see you in such pain, I…
Some Serious and Silly Words With a Friend
“I know all too well it don’t come easy, The chains of the world they seem to movin’ tight. I try to walk around, if I’m stumbling so come, Tryin’ to get up but…
Assessing the Contents of the Toolbox While in Exile
“By the rivers of Babylon Where we sat down And there we wept When we remembered Zion But the wicked carried us away in captivity…
‘Mission Impossible’ Merits a Blockbuster Cast
“To dream the impossible dream, To fight the unbeatable foe, … To reach the unreachable star, … This is my quest.” Vanquish ALS! Last week, my wife and I enjoyed a visit from a…
The Same as It Never Was
“And you may find yourself living in a shotgun shack … And you may ask yourself, ‘Well, how did I get here?’ … Letting the days go by, same as it ever was.” Although…
Twisting the Night Away on the Titanic
“And you know that you’re over the hill, When your mind makes a promise that your body can’t fill.” This refrain from the Little Feat song “Old Folks Boogie” could have been written…
Someone Thought Enough to Write About ALS, and It’s About Time
“The book I’m not reading is riveting The book I’m not reading keeps me up at night The book I’m not reading is better than TV Giving me insight.” These lyrics from “The…
