Posts by: Rick Jobus

Rick Jobus

December 18, 2019December 16, 2019

The Art of Declaring War on ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

Upon the death of someone with ALS, a common theme is often invoked. Words such as heroic or courageous may be chosen to characterize the deceased. The disease’s course ... Read more

November 27, 2019November 25, 2019

I’m Thankful for the People Who Enrich My Life

Columns, Notes From the ALS Front - a Column by Rick Jobus

It’s Thanksgiving Day tomorrow in the United States. Unsurprisingly, the evolution of its celebration has been shaped by our nation’s cultural dynamism. Rooted in religious ritual imported by the ... Read more

November 20, 2019November 18, 2019

Anger (Mis)Management: Seeking an Object of Blame for ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“We have met the enemy and he is us.” One day recently, I became incensed. My anger was not your garden-variety ire; I experienced the kind of rage that ... Read more

November 13, 2019November 13, 2019

Black Tie Optional: Dressing for Success with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

In Mark Twain’s book, “A Connecticut Yankee in King Arthur’s Court,” the protagonist, Hank Morgan, is ridiculed during a roundtable assemblage for his strange appearance and dress. He is ... Read more

November 6, 2019November 4, 2019

A Night of Heroes: I Was Humbled to Speak at an MDA Fundraiser

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I think of a hero as someone who understands the degree of responsibility that comes with his freedom.” —Bob Dylan Recently, I had the pleasure of participating in the ... Read more

October 16, 2019October 14, 2019

Adding MDA’s Vast Resources to My ALS Arsenal and Giving Back

Columns, Notes From the ALS Front - a Column by Rick Jobus

About a week after my initial ALS diagnosis, the crippling fog that it had produced lifted enough for me to seek a second opinion. The appointment took place at ... Read more

October 9, 2019November 13, 2019

Envisioning a Bright Future for Our Survivors

Columns, Notes From the ALS Front - a Column by Rick Jobus

From time to time, a comment in response to one of my columns reveals that the commenter has lost someone to ALS. The first time it happened, I paid ... Read more

October 2, 2019October 2, 2019

Could Thinking Outside the Box Lead to a Cure for ALS?

Columns, Notes From the ALS Front - a Column by Rick Jobus

Shortly after emerging from the stupor that culminated in my ALS diagnosis, I was consumed with a zeal to learn all that I could about the millstone dangling heavily ... Read more

September 25, 2019October 2, 2019

Showing Up with Carpe Diem Intent

Columns, Notes From the ALS Front - a Column by Rick Jobus

A week ago last Sunday, I spent a portion of the day, as I often do, going to church. Well, not quite “going.” Owing to the challenges of readying ... Read more

September 11, 2019September 11, 2019

Chairway to Heaven: My Power Wheelchair Takes Me Higher

Columns, Notes From the ALS Front - a Column by Rick Jobus

With apologies to Jimmy Page and Robert Plant: Chairway to Heaven I can no longer walk down the road Unable to take on any load Those facts cause much ... Read more

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