Posts by: Rick Jobus

Rick Jobus

August 5, 2020August 6, 2020

Navigating an Uncertain (Lega) Sea

Columns, Notes From the ALS Front - a Column by Rick Jobus

“The world will little note, nor long remember …”  These words of Abraham Lincoln were his prediction that the speech containing them would have no permanence. Ironically, the Gettysburg ... Read more

July 22, 2020July 27, 2020

The Absurdity of a Progressively Debilitating Terminal Illness

Columns, Notes From the ALS Front - a Column by Rick Jobus

 “Oh, I used to be disgusted and now I try to be amused.” Those lyrics from the Elvis Costello song “(The Angels Wanna Wear My) Red Shoes” are an ... Read more

July 15, 2020July 13, 2020

Taking Baby Steps in Search of a Cure

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Baby steps.”  That was the advice imparted to Bob Wiley by his psychiatrist, Dr. Leo Marvin, in the movie “What About Bob?“ Wiley, portrayed by Bill Murray, has a perfect ... Read more

June 24, 2020June 22, 2020

Oh My God — I Have ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

The lyrics to “God Shuffled His Feet,” a song by the Canadian band Crash Test Dummies, portray God as indifferent to our struggles. When he speaks of someone perhaps ... Read more

June 17, 2020June 15, 2020

‘What’s Love Got to Do With It?’

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Without your love, I’d be nowhere at all. I’d be lost if not for you.” The inspiration for that Bob Dylan song is a mystery to the general public. ... Read more

June 10, 2020June 8, 2020

ALS, Before and After

Columns, Notes From the ALS Front - a Column by Rick Jobus

Author T. H. White‘s collection of novels titled “The Once and Future King” depicts the legend of King Arthur. While the title suggests a symmetrical before and after, in ... Read more

June 3, 2020June 2, 2020

Houston, We Have a Problem

Columns, Notes From the ALS Front - a Column by Rick Jobus

The hubbub percolating around the SpaceX launch last weekend reminded me of the role a committed and engaged support team plays in averting and staving off peril.  In any ... Read more

May 20, 2020May 18, 2020

A Typical Day in My Life with ALS

Columns, Notes From the ALS Front - a Column by Rick Jobus

“Woke up, fell out of bed, dragged a comb across my head.” These are the first two lines of the bridge that Paul McCartney contributed to The Beatles’ song ... Read more

May 13, 2020May 11, 2020

The Monster that ALS Is

Columns, Notes From the ALS Front - a Column by Rick Jobus

Donald Rumsfeld, the former U.S. Secretary of Defense, once stated at a Defense Department briefing in 2002 that, “There are known knowns. There are things we know that we ... Read more

May 6, 2020May 4, 2020

ALS Awareness: What It’s Worth

Columns, Notes From the ALS Front - a Column by Rick Jobus

“I think it’s time we stop, children, what’s that sound? Everybody look what’s going down.” That call for awareness comes from the song “For What It’s Worth” by Buffalo ... Read more