Living Well with ALS - a column by Dagmar Munn

During the first year after my ALS diagnosis, I was overwhelmed by the physical changes I was experiencing as I learned to eat, move, and speak in new ways. One of the most significant developments was the impact ALS had on my perception of time. It was as if…

I’m sure we’ve entered the spooky season, a time when doing simple, normal activities feels more like a trip through the local haunted house. Goblins lurking in the shadows are ready to do their mischief. Who knew I’d find one hiding in the accessible stall of a restaurant’s restroom? But before…

Once in a while, there’s a topic on the ALS News Today Forums that inspires a new column. The question posted was a simple one: “Do you celebrate ALS-related anniversaries?” I intended my reply to be just a simple “Yes.” But I ended up adding, “However, what I…

Last week, I opened my inbox and an article from ALS News Today caught my eye. The story, “Maximizing lung function with ALS,” explained how patients can proactively manage their lung health while living with ALS. After reading it, I pumped my fist in the air, a…

Come on, do we really need another reminder to practice self-care? I think we do. I know I need it, especially because I have ALS and am living in a world that’s barreling down a bumpy track. The type of self-care I’m currently focusing on isn’t a self-indulgent three-day vacation,…

“I should be an ALS comedian. I know I could, too — that is, if it weren’t for my darn ALS.” That’s what I tell myself on the days when life’s funny moments come at me fast and furious. It’s another example of how this disease keeps on challenging…

I know I’ve said this many times, but it’s worth repeating: One of the most important lessons ALS has taught me is to never give up. This leads me into this week’s column. It’s a story about shoes and my pursuit of the perfect pair. Spoiler alert: There’s a…

This summer, I’ve been superfocused on a special fix-up project — namely, my posture. Why? Because earlier this year, whether I was sitting, standing, or walking, I noticed a slow slump forward of my upper body. Oh, I’d always begin sitting tall, but somehow, I’d morph into a shorter me.

Having ALS is certainly no laughing matter. But I’ve found over the years that it can give rise to many humorous moments. On some days, in fact, finding the funny while in a frustrating situation has been one of my best coping strategies. That’s why I was taken aback to…

“I still can’t understand you. Say it one more time.” My husband and I were having a simple conversation, and I was trying to emphasize my point of view, but my mouth and tongue simply wouldn’t coordinate. Instead of pausing to slow down, I just kept repeating the same garbled…