News

The Muscular Dystrophy Association (MDA) continues to enhance its research and healthcare services programs and has recently hired two new Scientific Program Officers: Amanda Haidet-Phillips and Laura Hagerty, both Ph.D. They will be reporting to Grace Pavlath, also Ph.D, who joined MDA in the past year to be the Scientific Program Director…

A clinical trial led by Dr. Marta Kaminska from the McGill University Health Center in Canada is currently recruiting participants to enroll in a study to assess the use of non-invasive home ventilation by patients with amyotrophic lateral sclerosis (ALS) using the iVAPS mode. The study is entitled…

The Society for Brain Mapping and Therapeutics (SMBT) 12th Annual World Congress Black Tie Gala was held on Saturday, March 7, 2015 at the Los Angeles Millennium Biltmore Hotel, Los Angeles, CA, during which the Society awarded the “Beacon of Courage and Dedication Award” to Professor Stephen Hawking — a living ALS medical miracle. Recorded on…

The Augie’s Quest initiative is hosting a 10 Year Reunion Bash on Friday, March 13. The event, which is being organized together with the 34th Annual IHRSA Tradeshow and Convention is taking place at the JW Marriott, in Los Angeles, California and the funds raised are going to be used to support the ALS Therapy Development…

‘My-own-voice,’ a system for patients who are losing their ability to speak due to diseases such as amyotrophic lateral sclerosis (ALS) to record and later use their voice to communicate, was presented at the Annual International Technology and Persons with Disabilities Conference (CSUN). The Acapela…

A recent study assessed the association between individual prescription compounds and amyotrophic lateral sclerosis (ALS) risk in a population-based study in Taiwan. The study entitled “Aspirin use associated with amyotrophic lateral sclerosis: a total population-based case-control study” was published in the Journal of…

A new Phase 2 clinical trial (ClinicalTrials.gov Identifier: NCT01938495) titled “Multi-Center, Randomized Controlled Study of the NeuRx® Diaphragm Pacing System™ (DPS) In Participants With Amyotrophic Lateral Sclerosis (ALS)” is examining the efficacy of DPS compared to standard of care in patients with ALS,…

Dr. Jonathan Kipnis, Ph.D., professor of neuroscience and Director of the Center for Brain Immunology and Glia (BIG) at the University of Virginia Medical School, and his research team from the Laboratory of Cellular and Molecular Neuroimmunology, made an important discovery in the field…

Biopharmaceutical company MediciNova, Inc. announced that an abstract on the company’s ongoing clinical trial of MN-166 (ibudilast) to address amyotrophic lateral sclerosis (ALS) has been accepted for presentation at the American Academy of Neurology (AAN) 67th Annual Meeting, which will take place on…

On February 23rd, the office of the Congressionally Directed Medical Research Programs (CDMRP) released a pre-announcement through the Department of Defense Amyotrophic Lateral Sclerosis Research Program (ALSRP) for the opening of the FY15 appropriations grant application cycle.  This pre-announcement is meant to give investigators the opportunity to begin preparations for submitting…