For the new year, I choose to live in the present and move forward
As someone with ALS, I can't afford to dwell in the past
December is traditionally a cherished time for holiday festivities and reflecting on the year that has passed. This month, I am sending bucketfuls of gratitude to my friends and family for their love and support, and I thank my readers for choosing to spend their time with me.
Yet, as someone living with ALS, dwelling on the past is a luxury I can’t afford. Looking backward often means confronting what I can no longer do, rather than celebrating what I can. I would much rather focus my energy on the future and set gentle, achievable goals, and here is why — and what I plan to do.
This past year began with me setting a simple, hopeful intention: “to be.” I envisioned smooth sailing, believing this intention alone would carry me through whatever came my way. But within a month or two, I was overwhelmed. It wasn’t dramatic; it was that constant, low-level feeling of having lost my momentum — a steady background noise that was difficult to shake. I had hoped that when I listened to the TV or read the news, the negativity would simply wash over me. Instead, it stuck. Between world events and the constant “online stuff,” maintaining a weekly routine and checking off daily tasks felt like I was wading through thick mud. The simple intention “to be” was not enough to keep the noise out and stay on track.
New mindset, new goals
So, for 2026, I have decided to return to setting goals and creating a yearly wish list to keep my focus sharp.
Since I live with ALS, my health is my priority. It isn’t just about surviving another year; it’s about being my best self in all my roles — a wife, mother, writer, and digital creator. Being diagnosed with ALS certainly changed my perspective on life. I now have more appreciation for it, even its challenging parts. I’m truly thankful to be alive, present, and here to see a new year begin.
For 2026, I will adopt a purposeful mix. My new overarching intention will be “to be present,” supported by clear boundaries and manageable goals.
- I will be simplifying my news sources to drastically reduce anxiety.
- I will be creating manageable to-do lists that ensure daily momentum.
- When I do start any new fiber or craft projects, I will actively choose not to feel guilty about not finishing them, but instead see them as “adventures in my creativity.”
This year, I choose not to dwell in the past, but to live fully in the present, fueled by the goals I set for a beautiful, creative, and healthy future. And of course, to continue to learn how to live well while living with ALS.
Note: ALS News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of ALS News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to ALS.
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