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ALS and teens and young adults.
If you are a teen or young adult with ALS, have you found support groups and assistance that are targeting issues that are specific to younger people with ALS. What support or services do you need?
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2 Replies
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In our country, the situation with information on the topic of ALS is completely absent. There are also no patient organizations… nothing. Rare doctors know what ALS is and what to do about it. The situation is sad …
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Sergey, I’m sorry to learn that you don’t have access to local patient organizations for support. Were you diagnosed in the Ukraine? How long did it take and what tests did they use to determine your diagnosis?
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