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  • Sergey

    April 3, 2019 at 1:23 pm

    In our country, the situation with information on the topic of ALS is completely absent. There are also no patient organizations… nothing. Rare doctors know what ALS is and what to do about it. The situation is sad …

  • Dagmar

    April 3, 2019 at 3:24 pm

    Sergey, I’m sorry to learn that you don’t have access to local patient organizations for support. Were you diagnosed in the Ukraine? How long did it take and what tests did they use to determine your diagnosis?

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