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My name is John. I live in AL and was diagnosed with ALS in 2003 at 41 years old. My symptoms started in late 90’s in left leg. For several years, I thought I was getting older. I normally ran 10-15 miles/week and my wife and I did several triathlons. We were always active by running, tennis, golf and playing with our 2 children. We even did a triathlon 5 months before I was diagnosed with ALS. In 2011-2016, I participated in a stem cell trial at the Emory ALS Center under Dr Glass. I think the stem cells have slowed my progression. It’s hard to prove the stem actually has slowed my ALS , because I was diagnosed 8 years before the trial. Prior to the trial, I was using a rolllator, walking up to 1/4 mile, driving, working at the front desk of the local tennis center. I’m still doing about the same as I was prior to the trial. I might be a little bit slower. My voice has gotten a little raspy and slower. I have done exercises but it really doesn’t seem helpful. I take Rilutek and Baclofen at night for spasms. I use a cough assist and bi-pap machines. I’m very grateful that I’m still progressing slow. I don’t really have a motto to live by. I take it one day at a time. I pray every night for all ALS patients and for a cure.