Since ALS is more prevalent among older adults, chances are higher that the ALS patient is one half of a married couple. Suddenly, roles change, and instead of a partnership the relationship evolves into that of one caring for the other.
A recent episode of “Dr. Phil” has sparked some controversy in the disabled community. He makes it very clear that with interabled relationships, the able-bodied partner should not take on the caregiver role – – you can be a lover or a caregiver, not both, he states.
Link to the episode here: Interabled Couples Criticize Dr. Phil.
But does the relationship change? Does it have to? Have you had experiences having your partner being your primary caregiver? What would you say are the pros and cons? What tips do you have for newly diagnosed “couples?”