DanD
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If you really want to know what my days are like watch my video. – Dan D. Montgomery
~ Dreams Flame Out ~
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I’ve begged my VA doctor to get me into one of the many clinical trials for ALS treatment but he failed me. I’ve contacted several clinical trials myself but have been refused treatment for dumb reasons like my diagnosis was more than 2 years ago, my breathing is too weak or that I am just too old. I have tried to invoke the Right-To-Try Law and access treatment from drug companies like BrainStorm for NurOwn but they denied my request. All the new cure money seems to be pouring into Mouse Clinical Trials. Mice! The Rats are getting the better treatment and all the $$$$’s from our donations while I lay here getting weaker and weaker.
~Dreams Flame Out~
https://1drv.ms/v/s!Aqo6HvkbNNDanGWJyM6M-0JmBzOn
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Since diagnosed with ALS I’ve been living with this shadow overhead and it feels like I’ve been sleeping with a cloud above my bed. I’ve been suffering for so long, trapped and I just can’t seem to move on. I’ve been hiding all my hopes and dreams away just in case a cure is found someday. I’ve been setting aside time, to clear a little space in the corners of my mind. All I want to do is find a way back to the life I once had. I can’t make it through another day without some hope for a way back….
I’ve been watching but the stars refuse to shine. I’ve been searching but I just don’t see the signs. I know that it’s out there. There’s got to be something for my soul somewhere. I’ve been looking for someone to shed some light. Not somebody just to get me through the night. I could use some direction and I’m open to any and all suggestions. All I want to do is find a way back to the life I once had. I can’t make it through another day without a way back. And if I open my heart again, I guess I’m hoping maybe AMX0035 will be there for me in the end….
There are moments when I don’t know if it’s real or if anybody feels the way I feel. I need inspiration not just another medical negotiation. All I want to do is find a way back to the life I once had. I can’t make it through without a way back. And if I open my heart to you, I’m hoping AMX0035 will shed some light. And if you help me to start again, you know that I’ll be there for you in the end…….I Promise
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~ Cowboy’n For Dummies ~
I retired from my government job in Arizona (architectural designer) where I prepared the construction drawings and specifications for the remodeling of state owned buildings and moved to East Texas (Bulah, TX, 8.4 miles south of Rusk on FM 23) with my “Cowboy’n For Dummies” book 4+ years ago to become a real cowboy.
I had so much to learn and it wasn’t easy switching from a computer to a tractor. I asked a lot of questions, my neighbors were very friendly and my pet cows were very forgiving.
I spent my days pretending to be a cowboy, walking around my small 19 acre ranch enjoying the beautiful rolling hills, creek, large trees, pond, my pet cows and baling the hay. Loving every minute of it there enjoying the simple things.
I really did enjoy my job there though the economic downturn forced me to take a second job. My primary duties, my 1st job was setting on the back porch and watching the sunrise. Then after spending the day in the sunshine pretending to be a cowboy I had to report to my 2nd job also in the same area of expertise, I would move to the front porch and watch the sunset. The job did not pay well and the hours were long but the benefits were fantastic.
No I’m not a real cowboy yet. This cowboy stuff is fun and very hard work but I am getting better at it. According to my neighbors there I was doing the work of 3 men out there on the ranch (That’s right 3 men!) a Moe, Larry and Curly. I’m not sure who those three men are but I am flattered to be associated with what must be 3 great legendary Texas Cowboys.
Moe, Larry and Curly?
Are you a Texan? Do you know who those 3 legendary cowboys are my neighbors associated my skills with?
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Mike Company, 3rd Battalion, 5th Marine Division, USMC veteran…… For over a year the doctors back at the VA in Palestine, Texas gave me one missed diagnosis after another. I became very angry and frustrated. I nearly stopped breathing. I lost strength and weight (50+ pounds). I gave my Texas ranch away in January 2016, my piece of heaven on earth that I had worked so hard for and I could not stop crying. Then I drifted out west and had been running a sleepless run, searching for the answer but losing my exits one by one.
After multiple emergency room visits it took one doctor about 10 minutes to figure out why I had been suffering (ALS). The VA say they will now pay 100% of my medical bills going forward but not the $48,000+ in bills I accumulated trying to get an answer to why I was getting weak.
This illness has not been fair! I’ve lost everything, my pet cows and my piece of heaven on earth my Bulah, Texas ranch. Now I am sitting here waiting, crying and trying to “Find My Way Back Home”. I pushed many of my close Texas friends away and did not share with them that I’d been living with this shadow overhead. I had been sleeping with a dark cloud above my bed. I suspended all my hopes and put all my dreams away, just in case I can restore them to life again someday.
I could use some direction and I’m open to all your suggestions. I’ve been watching but the stars refuse to shine. I’ve been searching but I just don’t see the signs. I’ve been looking for someone to shed some light not just somebody to get me through the night. I know the answer it’s out there. There’s got to be something or someone to fix me somewhere. All I want to do is find a way back home. I can’t make it much longer without knowing my way back.
There are moments when I don’t know if it’s real, or if anybody feels the way I feel. I need your inspiration. I need a solution and not just another doctor’s conciliation. I’ve been waiting so long. All I want to do is find my way back home. I can’t make it through without a way back to what I love. And if I open my heart again I guess I’m hoping an answer will be there before the end.
I’m sitting here waiting…… remembering those beautiful golden sunrises, shinin’ across my back pasture, shinin’ above my black angus herd that I miss so much. Those ranch memories help me make it thru the night and help to get me feelin’ free as can be, like the breeze off this warm Arizona Sonoran Desert sand.
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How am I today? Some days are better than others. Some are mothers. I ain’t even gonna lie. Some days, I don’t wanna get up, I just wanna give up. Don’t even get me started on some nights.