

Dave Williams
Forum Replies Created
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Dave Williams
MemberFebruary 2, 2021 at 6:18 pm in reply to: Tips for adjusting to living with a PEG (feeding tube)The swallow test did provide useful information. My speech therapist requested the rest for me and she could see where the food was getting stuck and offer some suggestions about how to clear the blockage.
The process is easy and painless.
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I also use speech assistant with my Android phone and tablet. I think it’s the best because I have difficulty typing and I can use it with SKYPE and a stylus.
The app developer is also very responsive to my requests.
Dave
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I used a cough assist machine for a couple months but did not think it was helping and gave it back. It could have just been me, as i do not have any problems coughing. It was recommended to me because i wanted a suction machine and i guess the to machines go together. I kept the suction.
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yes i requested to be included in the trial but did not meet the criteria. I was too old. If you want more information about m- stem cells this work was pioneered by a doctor currently in Panama and I think it’s the most promising stem cell research today.
The results of the study are to be available sometime in 2020 and I for one, is very hopeful about the outcome.
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My experience with the Milwaukee VA has been extraordinary. I was referred to the neurologist in October 2015. I thought I had a TIA because i was having problems speaking. The last thing i wanted was a needle nerve conduction test but that’s what I got. Along with a battery of other tests and the neurologist had an ominous expression on his face, and said I had ALS and that I would likely die in 3 to 5 years.
Not knowing what ALS was except, for all the ice bucket stuff, I began researching ALS and was frightened by what I discovered.
After being discharged from the marines in 1974, I used my benefits to obtain a degree in functional medicine. The marines not only taught me how to exercise, but ingrained exercise into my very being and continue to engage in daily exercise today. But I digress.
I was immediately enrolled in the ALS quarterly multidisciplinary clinic which has provided untold benefits. The doctors and clinicians at the VA bend over backwards to make sure I have everything i need. The facilities are state of the art and beyond a doubt, is the best healthcare I have ever experienced. I am amazed with the excellent care I’m receiving compared to the private sector .
I don’t know if my experience is the exception or the rule. I just know that i can’t praise the VA enough for how i have been treated.