[Gideon]

https://thesocialmedwork.com/ketas-ibudilast ask your Dr for Prescription

[Gideon]

Dear Robert
I wife taking Baclofen.4x a day, Gabapentin (300mgx3)three time a day, CBN+THC+CBD ( CBN 150mg, CBD 150mg, THC 150mg)Help with pain & neurological.

[Gideon]

My wife taking 500mg Tudca 2x a day, B complex, alpha lipoic acid, THC 50mg 2x day, Taurine 1000mg, NAC 600mg, Riluzole 150mg Radicava and more.
This year my wife ALS turn aggressive afther slow progression for 4 years.
My wife losing her voice, and can’t walk or stand any more. losing her memory.
I praying for all of you.

[Gideon]

Here’s a resource: Brand: Headmaster

[Gideon]

My wife taking Gabapentin 300mg x3 three  time a day for about two years.

I try to reduce Gabapentin by 1/3, The consequence was my wife hands start shaking ,

went back to original dose.

P S if you taking pill for depressing ,  Do not taking it with Gabapentin

 

[Gideon]

The COVID-19 mutated 1000 time .the new virus from UK is 70% more contagious , and today the new COVID-19 from Africa  is above 70% contagious. currently AstraZeneca and Pfizer conducting a new test with the current vaccine.

A new data show people with allergy symptoms should be more cautious to the vaccine.

From 200 million doses in 165 counties. 3000 had a reaction.

Me as caregiver for my wife who have ALS,

I will wait to see the reaction ,and how the vaccine is affected by new strength  COVID-19 .

[Gideon]

Dear Wane

Taking Baclofen don’t make you lose muscle strength.

My wife taking it every four hour ,+ 900mg of Gabapeatin 3x a day .

Side effects of baclofen :

<b>Drowsiness</b>, <b>dizziness</b>, <b>weakness</b>, <b>tiredness</b>, <b>headache</b>, trouble sleeping, <b>nausea</b>, increased urination, or <b>constipation</b> may occur.

[Gideon]

My wife on  trilogy noninvasive ventilator and Oxygen most of the time especially at night .She constantly tearing from her eyes . She been using Restasis for years . Does anybody have the same problem? Please let me know.

 

[Gideon]

For me is just watching my wife  decline every day is a struggle and  anxiety, looking at my wife beautiful face put on wife makeup just to help her to look beautiful , Is heartbreaking, and feel so helpless.And grandson who never been able to  known her.  Wake up every two hours to monitor her oxygen and ventilator. On  top of all fight with the insurance company for her   medication and equipment,Thy been  charge me $1708.00 a month for ventilator machine .It’s all about money You are just a # in the system .

 

 

[Gideon]

My wife Neck muscles are weak. I call Appel Clinic Dr Stanley Appel.  MD and ALS scientist at Houston Methodist Hospital .   Thy recommended “Headmaster Collar ” by Symmetric Designs Ltd.( bought on Amazon) You can adjust the distance between the chest and the neck up to 3″.With additional part to support the back of the neck( metal plate).  Unfortunately my wife developed allergic reaction from the material .

After a long research i did find one “AEVO” travel pillow on Amazon this one hold my wife neck and support  her  back of neck ,I recommend it and the price is right about $19.99.My wife  lost the use of her  hands and arms .She on trilogy noninvasive ventilation and Oxygen which help her at night and  day. P.S Unfortunately   to my saddest, Dr Appel is no longer at Appel Clinic after is wife pass away this year .He only do research on ALS.

[Gideon]

My wife use Nutricost Tudca 250mg, 60 Capsules (Tauroursodeoxycholic Acid) – Premium Quality   

2 a day for a. she start in 2017 taking 250 mg one a day .

[Gideon]

Dear John
Searchlight cover you until 65 years ,afther 65 thy don’t cover you
Searchlight drop my wife when she reach 65(Please see the contract from Searchlight)P.S thy send us a letter notified us my wife determinate at 65 when she legible for Medicare

[Gideon]

Dear Marianne
Thank you for your information, Home infusion company don’t budge. We have a advantage plan with part D, Home infusion copay is about 20% off $14000.00 for each infusion, This is a broken system, same medication in EU is only 570 Euro, I try to get someone to administrate ,but I can’t find anyone todo it.
We need to fight to change this system!!!
Congressman get a kickback from the pharmaceutical company and we pay for it
President Trump sign into a law “Right to try” My Dr given me prescription for Ibudilast (In EU was approve for ALS)Because in US is on clinical trial it. was refused
Very MAD that I can’t help my love of my life do to US regulation.