ALS News Today Forums | Ann Thomson | Activity https://alsnewstoday.com/forums/members/jimann/activity/ Activity feed for Ann Thomson. Thu, 16 Apr 2026 03:48:37 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 d4da51aa30c4b119d0beda3ee83b59e4 Ann Thomson replied to the discussion SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/supplements-to-slow-als-progression/#post-20501 Thu, 16 Sep 2021 17:46:39 -0500 Reply to SUPPLEMENTS TO SLOW ALS PROGRESSION

What are good brands for Tudca and other supplements?

]]> f5dacab84c186b38f61e988d98999677 Ann Thomson started the discussion Oral Hygiene in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/oral-hygiene/ Mon, 09 Aug 2021 17:13:11 -0500 Oral Hygiene

Does anyone have a suggestion on what to use instead of a regular toothbrush. My husband is having difficulty opening his mouth for brushing or rinse it. Are there any other ways to brush his teeth?

]]> 91722f145cd504c83aaff790c7b433f1 Ann Thomson replied to the discussion Flash Briefings in the forum Flash Briefings https://alsnewstoday.com/forums/forums/topic/flash-briefings-5/#post-20185 Mon, 09 Aug 2021 11:08:41 -0500 Reply to Flash Briefings

I love listening to the flash briefings. I have a hard time stopping my day to read so the news flash briefings fit the bill. I have my AirPod in one ear all day so I am hands free .  I just wish there were more. I wish alsnewstoday was in audio too.

]]> 5fea88f7054bc0487359018bd229cfff Ann Thomson replied to the discussion Virtual Meeting in the forum Awareness and Advocacy https://alsnewstoday.com/forums/forums/topic/virtual-meeting/#post-20053 Wed, 28 Jul 2021 21:53:25 -0500 Reply to Virtual Meeting

I would love it if you had a virtual meeting. I’m a cALS to my husband Jim who is completely nonverbal and can’t move.

]]> e057944a2fc1bb4a267f50be307a92aa Ann Thomson posted an update: Does anyone know if Theracurmin capsule can be opened up […] https://alsnewstoday.com/forums/activity/p/11418/ Sun, 02 May 2021 01:40:33 -0500 Does anyone know if Theracurmin capsule can be opened up and sprinkled into feeding tube?

]]> 1 1a425a9934aacfdff5608cb25392c5fe Ann Thomson started the discussion Neck drop in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/neck-drop/ Thu, 15 Apr 2021 02:09:45 -0500 Neck drop

Today my husband just started not being able to not being able to hold his head up. I was wondering if anyone had any suggestions what I can do to help him.

]]> 5b7209d21f1b26ea3cca8c27fe1aeda9 Ann Thomson posted an update: @dagmar-munn Good Morning. I was wondering if you […] https://alsnewstoday.com/forums/activity/p/11016/ Thu, 08 Apr 2021 11:35:31 -0500 @dagmar-munn Good Morning. I was wondering if you would tell me what brand of theracurmin you use? There’s so many different brands.

]]> 0 fc190f04ab45d50f74d22dab4f60e413 Ann Thomson replied to the discussion Online Support Groups in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/online-support-groups/#post-18292 Wed, 07 Apr 2021 15:50:45 -0500 Reply to Online Support Groups

I feel so helpless. My husband is failing quickly. I might be grasping but was wondering if anyone takes curcurmin and is so what dosage and brand!!!Help
❤️

]]> 7d7450b0e6d460f99fc1fb2e28e98f2b Ann Thomson posted an update: Has anyone taken AMX0035. My husband is declining and I’m […] https://alsnewstoday.com/forums/activity/p/10135/ Tue, 09 Feb 2021 16:46:23 -0600 Has anyone taken AMX0035. My husband is declining and I’m hoping I can get it for him. It is expensive but his life is worth it. I’m just leary

]]> 0 595832b2730256b3c3d28bffbafd33df Ann Thomson posted a new activity comment https://alsnewstoday.com/forums/activity/p/9613/#acomment-9642 Tue, 05 Jan 2021 23:22:47 -0600 Thank you for your quick answer. I figured it was too good to be true that’s why I came to the forum for an answer.

In reply to - Ann Thomson posted an update Good morning! Hope everyone had a great holiday season in spite of COVID. I was wondering if anyone take Leapxx. My husband is losing so much mobility. I’m desperate to try anything. ]]> 107e14824fc066faba5fecb34d0b449f Ann Thomson posted an update: Good morning! Hope everyone had a great holiday season […] https://alsnewstoday.com/forums/activity/p/9613/ Tue, 05 Jan 2021 15:53:05 -0600 Good morning! Hope everyone had a great holiday season in spite of COVID. I was wondering if anyone take Leapxx. My husband is losing so much mobility. I’m desperate to try anything.

]]> 2 82e189a318d4d0bfb4cc29e72eb4edc2 Ann Thomson replied to the discussion Leg jerks in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/leg-jerks/#post-17270 Thu, 24 Dec 2020 23:44:39 -0600 Reply to Leg jerks

Thank you for your suggestions. I am going to give him Aleve PM tonight.

]]> 3a4d280c5ff0f32ef99acc8c121c9ead Ann Thomson started the discussion Leg jerks in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/leg-jerks/ Wed, 23 Dec 2020 13:08:56 -0600 Leg jerks

My husband has been having horrible leg jerks,spasms or whatever you call them. He is taking Baclfen but it’s not helping. He hasn’t slept in 2 days. So, I was wondering if anyone has any suggestions on this. I feel so helpless and useless.
Merry Christmas, Happy Holidays to everyone on this wonderful forum.

]]> ca175243edabec09f871d9a25a90c9fa Ann Thomson replied to the discussion Covid on the Rise, again in the forum COVID-19 and ALS https://alsnewstoday.com/forums/forums/topic/covid-on-the-rise-again/#post-16869 Thu, 19 Nov 2020 21:54:45 -0600 Reply to Covid on the Rise, again

I am getting worried too. My husband has an ALS clinic appointment in 2 weeks and I am afraid it’s going to get canceled. He hasn’t seen the ALS team in person yet. I pray we make it there 🙏🙏🙏

]]> 8cf274046e536be58a87f6a3099c3007 Ann Thomson replied to the discussion Getting involved in clinical trials in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/getting-involved-in-clinical-trials/#post-16829 Tue, 17 Nov 2020 21:12:18 -0600 Reply to Getting involved in clinical trials

How do you get involved in trials? We live so far from them. I want my husband on a trial but I don’t seem to get to the right people.

Ann

]]> 3884df0330436579e2d68e6620ab2615 Ann Thomson replied to the discussion Nurown in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/nurown-2/#post-16578 Fri, 16 Oct 2020 21:23:07 -0500 Reply to Nurown

Is it too late to apply for the 3rd trial?  How do you go about signing up ?

]]> 60dc0dc0ff640443be61bad86affaf0b Ann Thomson replied to the discussion What is the hardest thing being a Caregiver? in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/what-is-the-hardest-thing-being-a-caregiver/#post-16469 Tue, 29 Sep 2020 23:21:23 -0500 Reply to What is the hardest thing being a Caregiver?

The hardest thing for me is feeling so helpless watching my husband struggle to eat, to drink and to walk. Just as Amy said, my husband was the bill payer, the handyman, the person I always leaned on. Now he can’t do any of that and I know it’s very selfish for me to say but it’s all in my court now. I miss my beautiful husband. I am so… Read more

]]> 564b343454d3656d3b9c5d34edbed4c6 Ann Thomson changed their profile picture https://alsnewstoday.com/forums/activity/p/7781/ Wed, 16 Sep 2020 12:02:01 -0500 0 3c9019b846a17c465116106f9fb6e1aa Ann Thomson changed their profile picture https://alsnewstoday.com/forums/activity/p/7779/ Wed, 16 Sep 2020 11:46:57 -0500 0 d983e275e02658fa8e4b4b12eff94ca6 Ann Thomson posted a new activity comment https://alsnewstoday.com/forums/activity/p/7313/#acomment-7328 Tue, 18 Aug 2020 23:56:08 -0500 We just say our GI doc. He said they want the G tube placed because my husband is having trouble with liquids. He coughs alot. So this is a procedure on the cautious side. I keep telling him to take deep breaths. In the nose and out through mouth. Today I told him to him as he is exhaling.
Thank You Dagmar
Ann

In reply to - Ann Thomson posted an update My husband was just told he needs a feeding tube (already). So the GI doctor said because of his “condition “ he cannot have general anesthesia so they have to go down his throat. […] ]]> b334d50a1814fc71154bd63030fbb605 Ann Thomson posted an update: My husband was just told he needs a feeding tube […] https://alsnewstoday.com/forums/activity/p/7313/ Mon, 17 Aug 2020 12:27:00 -0500 My husband was just told he needs a feeding tube (already). So the GI doctor said because of his “condition “ he cannot have general anesthesia so they have to go down his throat. Has anyone had this done this way. I’m so frightened. Why can’t he have it the normal way?

]]> 3 78bf16c8bbb43a36b6e8fe41449d9db8 Ann Thomson replied to the discussion Communication in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/communication/#post-16122 Fri, 14 Aug 2020 00:26:34 -0500 Reply to Communication

Thank You for all your wonderful advice. So far we are going to stay in our home. My kids are going to help us out with the lawn.

]]> 24d5b62396574b7f859e6368eb484871 Ann Thomson replied to the discussion Have you traveled soon after your diagnosis? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-traveled-soon-after-your-diagnosis/#post-16121 Fri, 14 Aug 2020 00:19:49 -0500 Reply to Have you traveled soon after your diagnosis?

Thank You so much for all of you and thank you for your advice.

]]> 2b4fb33a4777b72ca5c40e5320f95f8d Ann Thomson posted a new activity comment https://alsnewstoday.com/forums/activity/p/7246/#acomment-7264 Thu, 13 Aug 2020 17:17:42 -0500 Thank you again

In reply to - Ann Thomson posted an update Is leg cramping a common issue with ALS? My husband been suffering with them at night They just started this week ]]> c7896ca099ac145562db53f87d40b0a5 Ann Thomson posted a new activity comment https://alsnewstoday.com/forums/activity/p/7246/#acomment-7261 Thu, 13 Aug 2020 10:10:51 -0500 Thank You Dagmar. You always answer me and I really appreciate it. I’m praying that they find a cure or at least a slow down in progression if this horrible disease.
I was wondering what you think of that HEALEY Trial.? And NurOwn?
Thanks again
Ann
PS. You and your followers are in my prayers 🙏

In reply to - Ann Thomson posted an update Is leg cramping a common issue with ALS? My husband been suffering with them at night They just started this week ]]> f86ca6c53ea45bebf79a30d70fed4306 Ann Thomson posted an update: Is leg cramping a common issue with ALS? My husband […] https://alsnewstoday.com/forums/activity/p/7246/ Wed, 12 Aug 2020 11:42:25 -0500 Is leg cramping a common issue with ALS? My husband been suffering with them at night They just started this week

]]> 4 443c35df28b5d9190c49d5190dec62a5 Ann Thomson started the discussion Have you traveled soon after your diagnosis? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-traveled-soon-after-your-diagnosis/ Fri, 07 Aug 2020 14:59:23 -0500 Have you traveled soon after your diagnosis?

While My husband is still walking I was wondering if we could take a vacation. I know during this COVID-19 World we would have to be very careful but my husband wants to do this. I’m worried. Has anyone ever gone on a trip?

]]> cc5b26f52000c01a4f6e6fd0ac8a9f76 Ann Thomson replied to the discussion Perceptions of ALS in the forum ALS ​and​ ​Relationships https://alsnewstoday.com/forums/forums/topic/perceptions-of-als/#post-16033 Tue, 04 Aug 2020 20:40:47 -0500 Reply to Perceptions of ALS

My husband has ALS. When I told my family and our friends, everyone was shocked but I thank God that they are all so supportive.

]]> 09cbfc9e86a439861f7e1d3f0c8a09e0 Ann Thomson replied to the discussion Information or results on Radicava (Edaravone) in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/information-or-results-on-radicava-edaravone/#post-15982 Wed, 29 Jul 2020 11:18:35 -0500 Reply to Information or results on Radicava (Edaravone)

Thank You for your quick replies. I think my husband should go on Radicava. We go to Doctor in Aug I will talk to him then.
Thank You again for your feedback
Ann

]]> 7678983a4e8c19be144ab0ab350cc01f Ann Thomson replied to the discussion Do you have any feedback about ways we might be able to improve our forums? in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/do-you-have-any-feedback-about-ways-we-might-be-able-to-improve-our-forums/#post-15973 Tue, 28 Jul 2020 22:04:22 -0500 Reply to Do you have any feedback about ways we might be able to improve our forums?

I love this site. As a Wife if a Pals I need so much advice for caregivers. I find myself always watching my husband and asking him if he’s ok. I don’t want him getting aggravated with me. My heart breaks for him and all that have this horrible disease.
I wish I could get him on this forum. Jim would love it. He’s always been a talker but the… Read more

]]> 5ca806338dd278b150018c20299e1f3e Ann Thomson replied to the discussion Information or results on Radicava (Edaravone) in the forum Research Topics https://alsnewstoday.com/forums/forums/topic/information-or-results-on-radicava-edaravone/#post-15971 Tue, 28 Jul 2020 19:46:20 -0500 Reply to Information or results on Radicava (Edaravone)

My husband was do this past June. His Neurologist immediately put him on Riluzole but doesn’t believe in Radicava. What is your opinion? If it slows down the symptoms I want him to go on it

]]> 39a956069947d7d7e836f4aae0e720d2 Ann Thomson replied to the discussion Communication in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/communication/#post-15923 Tue, 21 Jul 2020 23:41:04 -0500 Reply to Communication

Thank You for all your advice. I Do know we need to make some big decisions but you’re right. I need to approach him slowly. He really doesn’t talk to me about his illness and therefore I keep it to myself. We have a very strong marriage and a big family. We will take each day, be thankful to our Lord for giving us this day and count our… Read more

]]> e937fc89a782e03dc7cb3184ee7a1278 Ann Thomson replied to the discussion "Talking Myself into New Habits" - A Column That Can Help pALS Talk Themselves into Talking More! in the forum Flash Briefings https://alsnewstoday.com/forums/forums/topic/talking-myself-into-new-habits-a-column-that-can-help-pals-talk-themselves-into-talking-more/#post-15896 Fri, 17 Jul 2020 20:59:49 -0500 Reply to "Talking Myself into New Habits" - A Column That Can Help pALS Talk Themselves into Talking More!

You speak so beautifully. How do I get that Goggle app for my husband Jim.
I love the flash briefings and I love this forum. Thank You so much.

]]> e63e643ba6f7f3cf92afba59d6ec61a9 Ann Thomson started the discussion Communication in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/communication/ Thu, 16 Jul 2020 20:11:11 -0500 Communication

My husband was recently diagnosed in June. We are having such a difficult time discussing our future. I don’t know how to approach it, I don’t want him to feel worse than he already does. We live in the country, with 9 acres of land. I know I won’t be able to keep up our home, it takes him 6 hours on our riding lawn mower. I know we will… Read more

]]> 0bee309b0477e78027dc0d79d343a0bc Ann Thomson posted an update: @dagmar-munn First I thank you so much for excepting me […] https://alsnewstoday.com/forums/activity/p/6662/ Fri, 10 Jul 2020 12:33:36 -0500 @dagmar-munn First I thank you so much for excepting me into your forum. My husband has been diagnosed with ALS for only 1 month. Needless to say it’s been devastating. His speech has been severely affected. He also has noticed a difference in his laughter ( he laughs at wrong times). We mentioned it to it neurologist and he prescribed… Read more

]]> 0 d1081d95cb56262a71fb30bc0ac4e6ca Ann Thomson and Dagmar are now connected https://alsnewstoday.com/forums/activity/p/6657/ Thu, 09 Jul 2020 21:44:22 -0500 0 d2d68f656bd7ac62492a325627aa914c Ann Thomson became a registered member https://alsnewstoday.com/forums/activity/p/6472/ Sun, 28 Jun 2020 16:00:55 -0500 2