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[ann-thomson]

I feel so helpless. My husband is failing quickly. I might be grasping but was wondering if anyone takes curcurmin and is so what dosage and brand!!!Help
❤️

[Dagmar]

Ann – – I’m sorry you’re feeling so frustrated and helpless. Your love for your husband shines through all that you are researching and wondering if it will help him.

first, may I ask what do you mean by “failing.”?? I think you’ve said he was diagnosed a year ago…what is changing? Respiratory? Mental? Physical? Before you self-prescribe a regimen of herbal supplements…what symptoms are you trying to address? And, have you received any suggestions from your doctor/medical team?

I’m not sure if Curcumin is the holy grail treatment that you are hoping it is – – but I recommend you read a little more about it before blindly following another patient’s dose. Here are 2 excellent resources for you.

Dr Bedlack’s webinar on curcumin (do note time stamp 13:48) https://www.neals.org/for-people-with-als-caregivers/educational-webinars/cured-by-curcumin-untangling-another-als-x-file
You can join Dr Bedlack’s trial here: https://clinicaltrials.gov/ct2/show/NCT04499963
Published research on ALS and curcumin: https://www.researchgate.net/publication/323504573_ALSUntangled_44_curcumin
(dosing & costs are on pg 3 of the document)

It’s always so good that you reach out to this forum for support and information – – let us help you sort out exactly what your husband needs and how we can help you feel less frustrated.

[Amanda]

Hello Ann, I am sorry that your husband is failing and you are feeling helpless. I am sure  you are doing everything you can to support him.  I also bought the curcurmin that Dr. Bedlack mentions in his studies.  I was able to find it on Amazon.