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    • #18722
      Amanda
      Keymaster

      Who is interested in attending the virtual get together? I’m excited to “meet” our members.  This is the first time Dagmar and I get to host a gathering for our community.  We definitely know that some of our members have difficulty speaking because of ALS and we are encouraging people to also use the chat box if they prefer. If you don’t want to post a comment, than of course we will take our time and make sure everyone is heard.  I’m just curious what to expect for the meeting. Do you like this idea?

      • This topic was modified 4 months, 2 weeks ago by Amanda.
    • #18742
      Dagmar Munn
      Keymaster

      Yes, this is exciting news here in the forum. To read what’s happening on May 12th go to this post:https://alsnewstoday.com/forums/forums/topic/als-awareness-month-forum-member-zoom-call/

      We hope you will join us!

      And like Amanda said, don’t worry about your ability to speak – – I’d love to “see” you and wave to you. Besides, my speech isn’t the best either… but I’ll try. (and there’s always the Chat Box to type your comments)

      Any discussion suggestions? Or, leave it up to Amanda & me, and our creative minds 🙂 🙂

    • #20014
      Cheryl Teribury
      Participant

      Hi Amanda,

      Have you started these virtual meetings?  I would like to participate.

      Cheryl

      • #20018
        Dagmar Munn
        Keymaster

        Hi Cheryl, It’s great to read that you are interested in virtual meetings. This is something Amanda and I tried during May (ALS Awareness Month). But, it was a one-time event 🙁 Hopefully, we’ll be holding another one again in the future – – and we’ll definitely let you know when, so you can join us 🙂

    • #20027
      David Crellin
      Participant

      A little request from the UK and other European countries: if you’re OK with day-time meetings then the time difference (ET+5 for me) means I don’t have to stay up too late.

    • #20053
      Ann Thomson
      Participant

      I would love it if you had a virtual meeting. I’m a cALS to my husband Jim who is completely nonverbal and can’t move.

    • #20055
      Dagmar Munn
      Keymaster

      Wow – – it’s great that we’re gaining interest in setting up a virtual (online/Zoom) meeting of our members!

      How about some more input and suggestions as to what time of day/night is best for you? What’s your time zone and hours of availability?

      Thanks!

    • #20057
      Anonymous
      Inactive

      Time is tricky. A few of the Zoom meetings I have been in have people from India, which is way ahead of the USA timewise. It is the middle of the night there at 8pm EST here.

      • #20082
        Amanda
        Keymaster

        What would be a good time for you?

        • #20124
          Anonymous
          Inactive

          Midweek, usually 7-9pm  EST

    • #20107
      Kathleen B
      Participant

      I’m a recent Forums join–interested in the Virtual meeting idea too–best time for me is in the 10am-3pm time range– Eastern (Daylight savings) Time Zone of the United States.

    • #20117
      Amanda
      Keymaster

      Could the forum members interested let us know what time zone you are in, please. That may help Dagmar and I narrow down some options. We know it may be difficult to work around everyone’s schedule, but we will do our best to include as many members as we can.

    • #20138
      James Bonner
      Participant

      CDT

    • #20145
      Bill
      Participant

      I’m EST here and would try to join. I’m terrible at remembering the monthly zoom meeting the ALS has here in SwFL.

    • #20140
      Susan guarcello
      Participant

      I would be interested in a zoom meeting. I’m pretty flexible with time I’m   In eastern time zone.

       

       

    • #20147
      Susan guarcello
      Participant

      Bill, I live in SWFL. I will be joining the North Port meeting at the end of the month. Is that the one ou are referring to?

       

      • #20158
        Amanda
        Keymaster

        Susan, I’m in SWFL als0 🙂

    • #20172
      Susan guarcello
      Participant

      Amanda, i am so happy to hear i have a friend nearby. I hope i can call you friend. Thank you

    • #20173
      James A Gans
      Participant

      I am interested in attending a virtual or zoom meeting. At 69 my ALS started lightly one year ago and now my arms especially the right arm is very weak along with strong fatigue. I miss my violin very much. Please let me know if and when the virtual meeting will be. Thank you!

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