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    • #16025
      Amanda
      Keymaster

      Many people have a strong reaction when they are told that a close friend has ALS. Often, friends don’t know how to react or respond. Sometimes, people opt for distance until they can decide how they will interact with their friend.  When you told close friends/relatives that you (or your loved one) had ALS how did they respond? Did you find ways to make them comfortable? Have you been able to tell your friends and loved ones what you need from them, and what you don’t need?

    • #16033
      Ann Thomson
      Participant

      My husband has ALS. When I told my family and our friends, everyone was shocked but I thank God that they are all so supportive.

    • #16053
      Suzanne Akerman
      Participant

      I told family and friends a month after diagnosis. Notified far off friends and family at Facebook. All are supportive, call me instead of me calling them. All ask what they can do for me. I have never had such a great outpouring of support!

    • #16181
      Amanda
      Keymaster

      Having supportive friends and family can make all the difference.  If you need additional support seek out support groups.  You never know, you might be the one helping another person!

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