Finding my place as someone with slow ALS progression
I’ve been living with ALS for the past 15 years, and although it’s filled my days with life lessons and moments of gratitude, there have also been many twists of irony. One of…
Living Well With ALS
— Dagmar Munn
When Dagmar Munn was diagnosed with ALS at the age of 59 in 2010, she tapped into her nearly 30 years of professional health and wellness experience. She not only follows her own advice but also inspires and teaches others to do the same. In addition to her columnist role, she is one of the moderators for the ALS News Today Forums and writes a personal blog called “ALS and Wellness.” She lives with her husband in Green Valley, Arizona, enjoying finding humor in life’s situations and spending free time pursuing creative projects in fiber arts.
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What time well spent looks like in life with ALS
One of the interesting mental challenges I continue to experience as I live with ALS is its effect on my perception of time. The predicted prognosis of living only two to five years after…
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How can friction be eliminated in my daily life with ALS?
Before ALS entered my life, I barely noticed how easily I completed simple, everyday tasks. But living with ALS can be tiring, and it makes everything — including the little things, our run-of-the-mill…
Grateful for mini-miracles and lessons about living with ALS
Who would’ve guessed that wearing a pair of ankle-foot orthoses (AFOs) while on a simple haircut trip would turn into a near disaster? But with two mini-miracles and one big lesson about living with…
My tips for joining and getting the most out of an online ALS group
Over the past six years, I’ve welcomed over 2,000 people to the ALS News Today Forums. It’s one of my many duties as a forums co-moderator. The other things I do include being alert…
Positive self-talk helps me stay motivated when I need it
Last week, I fully intended to write a new “Living Well With ALS” column. I sat down, flipped open my laptop, gazed out the window, and got lost in a stare. As the…
I’ve found a perfect candidate for my inspirational folders
Do you have an ALS “inspiration folder?” I do. And I just added another name to my ever-growing list. Even though most people in my folder don’t have ALS, what inspires…
Don’t like resolutions? Try setting an intention for the new year
A few days ago, a friend asked if I’d made any New Year’s resolutions. “No,” I replied, shrugging. Then I changed my mind and answered “yes.” Seeing her bewildered expression upon my contradictory response,…
Why I named my column ‘Living Well with ALS’
I named my column “Living Well with ALS” for many reasons. The most important one was that each word in the title had a deep meaning for me. Six years ago, when…
How I made my own resilience checklist to live with ALS
Something was missing from the packet of patient information my doctor gave me on the day she told me I had ALS. But I didn’t discover that missing item until 12 months later.
How 4 wheels and Velcro help me move through my ALS life
Like many ALS patients, I had a difficult time accepting assistive devices into my life. In my case, a pair of ankle-foot orthoses (AFOs), a rollator, and a mobility scooter challenged my adaptability…
My Santa wish list for holiday events and life with ALS
Dear Santa, here’s my special wish list for the holiday season. I’m not asking for toys or special treats, just your help in making my holiday social events blend better with my life…
What I do when I’m feeling unmotivated in life with ALS
Can it be that we were cheering on athletes at the Olympics only a few months ago? Where did the summer go? Looking back, I realize I spent most of my summer and early…
