Californians can help fund ALS research through tax contributions

ALS Network gives details on how to contribute

Andrea Lobo, PhD avatar

by Andrea Lobo, PhD |

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People living in California can help fund amyotrophic lateral sclerosis (ALS) research when filing their state taxes.

The California ALS Research Network Voluntary Tax Contribution Fund allows Californians to contribute to research projects selected by the ALS Network’s scientific advisory committee. At least $250,000 must be raised annually for the program to remain on the California income tax return form, according to the law signed in 2023 by Gov. Gavin Newsom.

“ALS and related neurodegenerative diseases can impact anyone, so it’s on all of us to be a part of the solution,” Sheri Strahl, president and CEO of the ALS Network, said in a network press release. “The tax donation program enables a funding source to support some of the brightest minds in disease research, bridging the gap between the researcher’s bench and the patient’s bedside.”

To donate, a taxpayer should select code 447 on their California income tax return — 540 2EZ, 540, 540NR long or short form, and 541, Schedule C — in the contributions section, write the amount they wish to donate, and submit the form, the ALS Network said. The donation will be added to the taxpayer’s tax liability or deducted from any refund.

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Funds support projects aimed at potential treatments, cures

Contributions can be $1 or more, with no maximum amount.

The association provides a social media toolkit with images and content to spread the word about the tax checkoff initiative.

Funds will support the work of the ALS Network in California, helping fund projects aimed at developing effective treatments and ultimately cures for ALS and related neurodegenerative diseases, including Parkinson’s disease, Alzheimer’s disease, and frontotemporal dementia.

The California ALS Research Network aims to help coordinate the collaborative efforts of the state’s scientific infrastructures, including academic labs, biotech and pharmaceutical companies, and treatment clinics.

The ALS Network is a nonprofit organization dedicated to assisting the ALS community by providing access to quality care, funding research on ALS prevention and treatment strategies, and advocating for policies that support patients and research efforts.