EverythingALS launches new app version for broader ALS community
Patients and caregivers can access resources, contribute to ALS research
EverythingALS has launched a new version of its mobile app that now includes community support, artificial intelligence-powered chat assistance, and enhanced research opportunities to better serve people with amyotrophic lateral sclerosis (ALS) and their caregivers.
The app, which was previously designed only for people taking part in observational studies, has been expanded to also include patients and caregivers from the broader ALS community, allowing them to access vital information and resources, and to contribute to ALS research.
“We invite everyone in the ALS community, from newly diagnosed individuals to long-term patients and caregivers, to explore the new features and benefits of this comprehensive app,” the nonprofit EverythingALS said in its press release.
Pathfinders helps newly diagnosed patients connect with experienced guides
Coming to terms with an ALS diagnosis and living with the disease can be a challenge for many patients and their loved ones. To provide support to patients as they navigate their disease journey, the app includes a feature called Pathfinders that allows newly diagnosed patients to connect with experienced guides from the ALS community. The service is focused on alleviating the physical challenges associated with ALS, building mental resilience, and providing spiritual support to individuals affected by ALS.
A chat supported by generative artificial intelligence is now available in the app to provide timely and accurate answers to common questions. In this chat, patients and caregivers can ask questions related to ongoing clinical trials and observational studies, as well as other aspects of ALS care. By making vital information more accessible, the new tool may help patients and caregivers make more informed treatment and care decisions.
In alignment with EverythingALS’s focus on disease research, the organization added a variety of features to the app that can help patients participate in clinical studies. For example, by providing regular speech samples or tracking their diet and daily activity through the app, patients may be contributing important data for research purposes while monitoring their condition.
The app will also roll out a clinical support tool for various ALS centers of excellence. With patient consent, data can be collected, anonymized, and shared with companies focused on developing novel ALS therapies.
The app is now available in the Apple App Store and Google Play Store.
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