Clinical Research ‘Dashboard’ Brings Latest on ALS Trials to Patients

Clinical Research ‘Dashboard’ Brings Latest on ALS Trials to Patients

The nonprofit group I AM ALS has opened a global resource to help keep amyotrophic lateral sclerosis (ALS) patients and their caregivers fully aware of clinical research underway. Called ALS Signal: Clinical Research Dashboard and created by patients, caregivers, and advocates, the dashboard offers a user-friendly way to learn about…

Learning to Cherish a Room With a View

Last week, I ended this column with a tongue-in-cheek inference that in deference to an improbable ALS curse befalling me, I would not share two near-disaster experiences anytime soon. This week, I am reneging on that prediction with the following disclaimer:…

Jane Calmes ALS Scholarship Awards Given to 94 Students Across US

The ALS Association has awarded $470,000 in scholarships to 94 students in the U.S. whose lives have been financially affected by amyotrophic lateral sclerosis (ALS). Each scholarship recipient receives $5,000 annually through the organization’s Jane Calmes ALS Scholarship Fund to help cover education costs. Awardees for the…

3 New Ways to Stay Energized

What a long, crazy summer it’s been, as we’re living with minimal social interaction and long periods of isolation. Parts of our lives have changed without our consent, and we have to be on the lookout for developing symptoms. And those are just the challenges of living with ALS…

New ALS Chip Model Closely Mimics Disease, May Aid Research

Researchers report having created a new human-on-a-chip model, one able to more accurately simulate the clinical features of amyotrophic lateral sclerosis (ALS) in people. The chip uses motor neurons — the nerve cells responsible for controlling voluntary muscles — derived from stem cells isolated from ALS patients. This approach…

Just Showing Up Is an Accomplishment

Years before my husband was diagnosed with ALS, I coordinated a tutoring program in Milwaukee. Many of the children and teens I worked with lived with stress and instability in their homes and neighborhoods. For some kids, just consistently showing up to school and the tutoring program was an accomplishment…