Living with ALS: Stories of Strength

Living with ALS: Stories of Strength

“ALS is a fatal, neurodegenerative disease that attacks nerve cells and pathways in the brain and spinal cord and slowly robs the body of its ability to speak, swallow and breathe. In the United States, a person is diagnosed with ALS every 90 minutes. The ALS Association St. Louis…

#TBT – Living with ALS

In this 2009 WLUK-TV FOX 11 story, meet “Peggy Driessen who has ALS, or Lou Gehrig’s Disease. She gets through each day with a positive attitude — and a lot of help from loved ones.” Learn more about ALS here: https://bit.ly/ALSNewsToday…

Jim Barber: 2016 Hero Living with ALS

“Meet Jim Barber, one of the four people with amyotrophic lateral sclerosis (ALS) honored by the ALS Association, in February 2016, for their extraordinary efforts in making a difference for the ALS community.” Read more on ALS here: https://bit.ly/1RmVMwo…

Mind Matters in Motor Neurone Disease

In this video from The University of Edinburgh, watch “Professor Sharon Abrahams, Personal Chair in Neuropsychology, deliver her inaugural lecture entitled Mind Matters in Motor Neurone Disease. In this lecture, Prof. Abrahams discusses her work with people living with a degenerative disease and in particular motor neurone disease. This…

ALS 101 – What is ALS?

In this Project ALS video, learn more about ALS, also known as Lou Gehrig’s disease. ALS is a brain disease which is closely related to Parkinson’s, Alzheimer’s, and Huntington’s diseases. ALS targets cells in the brain and spinal cord called motor neurons. In ALS, as motor neurons die, a…

ALS Drug Developer Cytokinetics Joins Rare Disease Day Efforts to Educate and Promote Change

Cytokinetics announced that it has joined with efforts by the European Organisation for Rare Diseases (EURORDIS) and the National Organization for Rare Disorders (NORD) to raise awareness for Rare Disease Day. Cytokinetics is focused on discovering, developing, and commercializing new types of muscle activators, and has developed the amyotrophic lateral sclerosis (ALS) drug candidate…

Nanci Ryder: 2016 Hero Living with ALS

Meet Nanci Ryder, one of the four people with amyotrophic lateral Sclerosis (ALS) honored by the ALS Association, in February 2016, for their extraordinary efforts in making a difference for the ALS community. Read more on ALS here: https://bit.ly/1RmVMwo…